Can someone help me? I’ve searched the web and all the MS sites and can’t find the answer.
I would like to hear from someone who has symptoms daily that come and go. Like everyday. For instance I permanently have numb feet but sometimes in the day it travels up to my knees then goes away back to just the feet. I have tingling buzzing in my legs that is there all the time but increases depending on what kind of day I’m having. Ants in my limbs come and go during the day. Balance varies each day. Aching muscles each day but a variety of different muscles.
This is every day without question. Pain, buzzing, breathless each and every day. Whenever I google it all I can find is ‘people have relapses periods with no symptoms’ and ‘progressive which is where people slowly get worse’. I think I’m falling in that camp and the neuro end of last year put me on Ocrevus to try and halt progression.
But with the daily symptoms it means I can’t plan a thing unless I get dosed up on lyrica and baclofen. Anyone? Judy
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