Last reply 6 months ago

Hi everyone

Am starting treatment and am still waiting for it to arrive. There page work at the hospital and the drug company that has to happen which is taking so long to get here. So I should have it within a month.

Has anyone had any experience with it?
I chose this drug cause it wont affect me to have children dramatically etc and there not a lot of side affects. I still have to take my gabapentin and my baclofen while on the injections. But I do fall pregnant I have to stop taking gabapentin which my doctor warn. Things are getting more complicated

But back on point. Please tell me your experience the good, the bad and the ugly. (Been waiting along time to say that phrase the good, the bad and the ugly)

Thank you Everyone 🙂

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.

6 months ago

@sarah_graham , you’ll find a lot of previous threads regarding Copaxone, by selecting the “Copaxone” tag that was automatically added to the bottom of your post above.

One of the problems with Copaxone is lipoatrophy. This can be mitigated by disciplined rotation of injection sites..

6 months ago

Hi Sarah-graham
I was on Copaxone for a few years whilst living in the USA and had 2 of my 3 children (each time taking a break from Copaxone back then). Seemed to work for me with no awful side effects. After child number 3 in 2008, back in the UK, I switched to Extavia which has worked for me too. Good luck in starting on Copaxone.
Loo – K 😎

6 months ago

I use copaxone 40 mg three times a week injected, been on this drug 10 years my MS hasn’t gotten any worse

6 months ago

I was on Copaxone for eleven years with the only side effect being lipoatrophy in both thighs, which developed after six years or so, despite rotating the injection sites as instructed. Lipoatrophy is ugly and permanent. It’s basically a collapsing of fat cells round an injection site, causing a visible ‘dip’. Now, collapsing a bit of your body fat may sound like a beauty treatment but it’s not – more like a partially deflated rubber ball! I was partly to blame because I didn’t notice the beginnings of it and by the time I realised, the damage was done. I was injecting every day, but I believe that Copaxone can now be given in bigger doses with only three injections every week. This will greatly reduce the risk of lipoatrophy and if you pay more attention than I did to the condition of your skin round the injection sites you’ll be absolutely fine. Plus, being on Copaxone will spare you the side effects of the beta interferons. xxx

Join to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.