@staying-connected 

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staying-connected

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Hi all, I’ve had MS for over 2 years now. The first year I was shocked and silent (only my husband knew) and my husband handled it worse than me. I spent my first year being positive for him (and probably buried my feelings in the process). The second year I told my Mum and spent that year trying to be positive to support both my Mum and husband (further burying my feelings). My MS symptoms at the moment are easy to hide, so my kids and wider family do not know. I don’t really have anyone that can support me emotionally, so I haven’t been in a hurry to tell anymore people. Instead I saw a pychologist and this was a real eye opener for me... She suggested that perhaps I have emotional deprivation from not being able to open up and release my deep down feeling especially around Being diagnosed with MS and what that actually means for me now and in the future... she also sensed a degree of loneliness. This bought tears to my eyes as I never thought of myself as lonely as I have a family, I and reasonably extroverted and chat to anyone... but she was right... I don’t have those deep connections where you can just be with someone and really tell them how you feel. And they just listen without trying to move you through the feeling quickly to move back into a happy space... this pychologist has hit a raw nerve and I am questioning so much about my life. I feel like I have to go back to that time when I was first diagnosed and sit with my feelings to really know how I feel about it all, without trying to protect those close to me... I don’t think I want to emotionally do this on my own; but I sense those close to me aren’t emotionally capable.
@grandma

We're here all the time, you can have a rant, a cry, a celebration, it's all something we've done before, we don't judge, take anything personally and we're quite a nice bunch, we may never meet but you will make good friends here, so welcome staying connected, and wether you tell your family or not, we're here😍 Jill

@Stumbler

@staying-connected , it's the nature of the beast, I'm afraid. MS is one of those taboo subjects, which are all too often avoided. So, general awareness is sadly limited. It is difficult to open up on a subject, which is not really understood. So, any feelings that you may have are difficult to communicate. This is where this community can be so beneficial, we just understand. :wink: