@celan2go 

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celan2go

Cognitive difficulties

Hello, this is my first attempt at starting a conversation here, so bear with me. Many months ago now, I lost my ability to think. Specifically, to engage in tasks that require significant concentration. I used to be a poet, and painter, but both of those activities, as well as reading (some more substantial than a newspaper) and watching foreign movies or any film that demands close attention. I'm guessing from what I've read here, that this is the dreaded brain fog. I've had memory troubles for years (long before I got MS, diagnosed in 2001.) related to severe depression and PTSD. So, in some ways, it's not a great stretch, but I used to be able to do some more strenuous thinking activities (like writnfg and painting). What is strange is that I'm not having any discernible thoughts. Although I never really had to think to write, something ( a phrase, an image ,etc.) would trigger me to write. Kind of the same with painting. I never had a preconceived ida as to what I was going to paint, choosing the size of the canvas was something I thought about more, than what I would paint. I'd pick a color and start painting. Typically, the painting ( or the poem) would direct itself where it wanted to go. Very rarely when painting, (and less so when writing) would I have something specific I wanted to do. And it worked somehow. It was very much plugged into the subconscious. The images that "appeared" on the canvas when I first started painting were very surprising. Anyhow, those are things I used to do. When I try ti explain it to other people, they have advice on how to overcome this, just start writing or painting, etc., not really understanding this is visceral, mot a matter of just doing it and thereby making it happen. They don't understand. And at the same time, my balance has been way off lately. I used to only need a cane when I was out in the world, not when I am at home. Anyhow, it makes me sad. There's just nothing there. And part of it may be caused by psych meds, but the lack of wgat I would label "sensation" internally, is new. I feel numb. It's also been nearly ten or more years since I've had an MRI, which I plan to bring up with my neurologist (I have a scheduled appointment in a week and a half). I see my neurologist every 3-4 months, and she gives me a very thorough exam of the physical side of MS (walking, reflexes,, hearing, seeing, and so on) but I am a bit surprised it's been so long since I've had an MRI. My MS has been stable since I had my only relapse in 2004. Nearly 14 years without a relapse is very fortunate, I'm not complaining, I feel very lucky. My symptoms have been pretty mild. I don't have problems with fatigue, pain, or relapses. But now, it seems I am getting some of the more unplesant issues that go along with MS. So, I know I've bounced all over the place, not really presented a very coherent case of my difficulty. Thanks for reading this.
@merfield

I don't have brain fog but my balance is rubbish. I'm ppMS. My partner is a painter who is finding things a bit difficult as he's been DXd with Alzheimer's and he has in the past just painted from his imagination or from an incident that's grabbed him, or been inspired by our local landscapes. Your life story is really interesting and it's tough that you find its not possible to be creative any more. You say folks don't understand...but how can they, unless they have ms. None of my friends or family 'really' understand but I really think our friends want to be helpful, and they also don't like our discomfort so they don't really know what to say to help. BTW your lady from Mexico sounds ideal if she already been involved with those with MS....hope it works out for you both. I reckon to have an MRI every year or so ( here in the UK ) to establish new lesions/inflammation so I think you're right to mention the need to your current neuro. Anyway @celan2go the best of luck.....now you know we're here and we 'get it'. Xx

@staying-connected

Hi @celan2go this sounds very frustrating for you - I can tell you have a great mind that really wants to look deeper into various subject matters. I do agree that an MRI would be worth pursuing as 10 years does seem a rather long time. I may be way off track here but just incase you are interested I find meditation is great to bring clarity of mind. I would recommend irest as a start, you can find a free 20min audio of irest meditation at https://www.irest.us/projects/irest All the best, and thanks for sharing.