Last reply 5 months ago
Advice on when to start treatment

Hi i was diagnosed with RRMS in January and have been advised to start treatment as soon as possible I was all set to have ocrevus in May but have been thinking of postponing it till September as we are going to Disneyworld in August. I feel absolutely great at present except for the fatigue and numbness in my left arm since relapse in October.
Would I be silly to postpone ?
I’ve been looking forward to this trip so much I don’t want to feel awful if I start treatment and regret it.
Any advice would be greatly appreciated 🙂

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stumbler
5 months ago

@poppyrose , this is clearly your decision to make. And, it seems that you would be more comfortable postponing the Ocrevus. This would avoid causing you stress leading up to your holiday.

Only time will tell if this was the right decision, but who know what the future holds.

Just ensure you have a chilled out time and come back refreshed. Enjoy.


poppyrose
5 months ago

Thank you ☺️


thingy003
5 months ago

@poppyrose I went to Walt Disney World in Florida following a huge attack but before I had been diagnosed. I actually found that the sunshine in April helped me, but I am a summer sort of guy. We are heading back to Florida again this October but I don’t think I could handle the summer heat so be careful of that.

In regards to Ocreveus I can’t comment as it isn’t my DMD but be mindful of what a negative effect stress acan have and try to avoid stress where you can.


poppyrose
5 months ago

@thingy003 yes I struggle in the cold weather so hoping the warmth will help 🙂 I’ve been in August before and was ok but that was before being diagnosed, I’m finding since being diagnosed I’m questioning every little thing. I think by postponing I will be a lot less stressed.
Thank you

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