@Sammy93 

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Sammy93

Advice on Lemtrada?

Hi Everyone, Quite new here, my journey to my MS diagnosis was quite a lengthy one. I started showing symptoms just after my 21st birthday in 2014, however finally got my diagnosis in Feb this year. Since then I feel that things have been moving very quickly and I haven't really been able to catch up with myself or process anything that's been happening. I have recently started Copaxone (about a month ago) and I am really struggling with it, I have a low fat percentage on my body so I am finding the injections pretty painful. The reason that I chose Copaxone is that you are still able to conceive whilst on it, unlike the other DMT's. After my last appointment with my Neurologist we discussed the benefits of Lemtrada and whether it would be something that I'd be interested in. After speaking to a few people and reading up on it I think logically it would be the best choice for my health as it is most effective earlier on in your diagnosis, and is 70% effective unlike the Copaxone which is 30%. However, I'm struggling with the idea that I will probably have to take a fair bit of time off work to have Lemtrada, and won't be able to try for a baby again for about 2 years (I had an ectopic pregnancy earlier this year meaning my fertility is reduced, so would be keen to try again sooner rather than later in case that happens again). I am looking for some advice really from people who have had Lemtrada, and if anyone else can shine any light to help with my decision. I am attending a discussion group about Lemtrada on 10th October. Any help is appreciated xoxoxox
@zarah

Hey @sammy93 am now 6 weeks post round one of Lemtrada and can honestly say it was the best decision I ve made. I was diagnosed March this year so my neurologist wants to hit it hard. I was abit nervous with my decision but so glad I’ve done it. Feel free to message if you have any questions xxx

@Sammy93

Thanks @zarah I know logically it's the right thing to do, I think I'm just scared and it feels like I'm putting my life on hold to do it. How long after your infusions was it before you felt yourself again? What was it like once you got home from hospital? xo