@char

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char

MS Symptoms ???

Hi, I'm a newbie to here. I have not been diagnosed with MS but am under investigation for the symptoms I'm getting. I have been having eye problems for awhile now but recently it's been a lot worse. I have flashes of lights most of the time and pain across my eyes, more pain in my right eye,they are really sensitive to light and have i have trouble focusing sometimes.I went to a&e last weekend as the pain got so bad.I was referred to an ophthalmologist who says my eyes are healthy and suspect Optic neuritis. I get a weird sensation in my face, scalp and hands, a feeling like i have walked into spider webs.Very distressing at times. I get pins and needles in my right hand and severe pain in the back of my head, that seems to come on for no reason.My muscles feel like they are twitching and I feel constantly really tierd.I wake most mornings with a headache and pain in my eyes and go to bed with a burning feet sensation that is distressing. I loose my balance alot mainly in the mornings. I have always been forgetful but it seems to be getting silly how much I'm forgetting.Concentration is hard as my mind seems to go blank. I am waiting to see a neurologist and hope they can get to the bottom of it, I'm not working at the mo, as i feel unable to do it for the time being.I just wanted your views on my symptoms as sometimes i feel I'm going mad imagining it all! Thank you for your time. I will let you know the outcome.

Stumbler

@Stumbler

Hi Char, sorry that you've felt the need to join us. You're in the right hands with a neurologist now to find out what's going on. It would be useful if you could make a short list of your symptoms so that the Neuro can refer to it. They'll also do a preliminary investigation of you, e.g. how you walk and your reactions to sensory stimulation. They may arrange for other tests, e.g. an MRI scan and visual evoked potentials. But, whilst your symptoms have brought you to an MS forum, please consider that these symptoms do go across various conditions. For the time being, try not to worry (easier said than done, I know) as these conditions can be made worse with stress. Take care :)

f3ng5hu1

@f3ng5hu1

Hi Char, welcome to the site. I agree with Stumbler, the neurologist will be able to advise you better about this. I am surprised that you haven't already been submitted to hospital for tests given the fact that your ophthalmologist suspects optical neuritis. The symptoms you describe are fairly common with ms but then pretty much most symptoms could be attributed to ms as it is a very varied condition which via the brain mechanism emulates the sort of things you describe. It may or may not be ms but if it is, don't panic, at least then you will know what it is and that should take the edge off a bit. It's not knowing sometimes i think that can make things like this particularly daunting.

char

@char

Thank you, i will take your advice.Thank you for your views and help on the matter. It is much appreciated :)

char

@char

Hi Chels, thank you for your reply, kind of you to take the time to.You have been waiting a year!? blimy.I think if we knew that it is MS then we would know what we are dealing with, i find the not knowing part hard to deal with aswell.If that makes sense. I will PM you, thanks :)

reddread

@reddread

Hi Char, I'm in the exact same boat you are in. My list of symptoms is pretty similar to yours, along with numbness, perception issues, and a complete loss of stability in my right leg. I visited an neurologist today, but I have to say that I am NOT impressed with how this was handled. I was supposed to have a neurological exam, but I wasn't even in his office for more than 5 minutes. He did only a few tests; he checked my field of vision, bonked a couple reflexes, got me to walk heel-to-toe (which I failed miserably), and incorrectly did the Babinski test (with my socks still on and used a SMOOTH object to rub the foot). After that he told me I should see a psychiatrist for anxiety/depression. The ONLY positive aspect of the appointment is that I convinced him to schedule an MRI because I didn't feel satisfied with his "diagnosis". I sincerely hope that your neuro has some compassion and does a full exam before assuming you're just a hypochondriac.

reddread

@reddread

Glad to hear that I'm not the only one being dismissed as crazy or a hypochondriac. My original GP even flat out said "My guess is you're a bit of a hypochondriac, just remember, as long as you know that nothing is wrong, the strange feelings should go away"... That almost floored me right there. I'm the type of person that "deals with it" for as long as possible before asking for help. I rarely go to the doctor unless i have to and there i was, 3 hours early for my emergency appointment because the only thing i could focus on was what the #$%@ was going on with my body. So now I have to wait a month or two for an MRI, although I think I might be the one to have to harass the hospital to get one, because this neuro didn't even look like he was going to keep the notes he was taking down. He was writing on the back of some unrelated paper, right in the center of the page, in point form, not using more than 3 words per note. Why does it have to be so hard to get a doctor to be interested in your condition without them defaulting to the "must be something in the brain, so we can't check" or "it's all in your head"?

char

@char

Hi Chels and Reddread,Thank you. What am awful week i've had. Ive had my usual symptoms but on top of those i've felt like i'm drunk, went out to the shops and i was not with it atall, i'm sure people thought i was drunk or on drugs. I was having trouble talking, walking and just thinking straight. I got home as soon as i could and just slept.Also I'm finding when i'm walking i feel im going to one side and i've started almost falling over because of it.Trip up.I'm noticing my speech is slurring abit,getting words muddled not enough for other people to notice but i am. Making me so conscious.I am having a party next weekend and i am scared as i just don't know how i'm going to feel. Waiting for my appointment with neurologist to come through.

reddread

@reddread

<a href='https://shift.ms/community/people/Chels/' rel='nofollow'>@Chels</a>: Personally, I think that is not the best approach, in fact it seems less effective than just using the internet to figure it out. In the past 7 months, the only medical testing done on me is a standard blood test, and I think it was only done to satisfy my need for them to do something other than ask "So, what's wrong?"

cameron

@cameron

I have so much sympathy with these posts about awful neurologists. The first one I saw said he suspected MS and that I should 'go home and wait for things to happen to you'. That comment - I am convinced - brought on a relapse. But good came from it because my GP was so incensed she referred me to London, where the dx came very quickly. The posts are dead right - the neuros have the answers but if you get any kind of brush off, go elsewhere.

boodle06

@boodle06

Chels... Do you think he will send you for another MRI? How long ago was your last one?

phoenixfire92

@phoenixfire92

Wow, Im new here and reading all of this just highlights the past six years for me. I was just diagnosed officially last July but was having random symptoms since August 2006. Unfortunately I was living in a part of the world that doesnt have very good medical care but I tried my best to find out was going on. I saw so many doctors and was told I was stressed out, maybe had diabetes, and even that I was going through early menopause. I'm 29. I was having problems walking and constantly walking into walls and just thought I was clumsy. In 2010 my symptoms got so bad I couldnt walk on my own and was even visibily weaving while sitting down. An old woman who is a folk doctor saw me and said I show go get a brain scan. Thank God for her. Luckily I was able to see a neurologist who ordered an MRI with contrast on the same day and admitted me to a hospital for a week. (This only happened because in the middle east you pay for medical services before you receive them, Thank God for having money in the bank at the time.) I received steroid treament for 5 days and prednisone for a month but no diagnosis. The doctor put me on vitamin b complex, vitamin d and alpha lipoic acid but told me I would have better luck finding treatment in another country becuase he suspected ms but wasnt experienced enough in the field. At least he was honest. The supplements helped alot and probably kept me from relapsing for a whole year but not knowing to avoid physical stress and heat I had a relapse during summer vacation. Such a drag. This disease has caused so many changes in my life but it is honestly a relief to know what is going on. MS is one of the hardest diseases to diagnose because the symptoms are so broad. At times you think you are over reacting and avoid causing drama for the people in your life. Looking back I would have kept a journal of my daily symptoms were and brought that list with me to the doctor. It helps to see the proof of what your dealing with and makes it harder for anyone to tell you its all in your head. Finding a specialist in ms rather than a general neurologist is important but the most important thing is having a good relationship with the doctor treating you so dont be afraid to look around. In the US the National MS Society has listing of recognized specialists. I hope you have something similar or can look to the online community for help where you live. Dont give up.