@azzy

Last reply

azzy

Lhermitte's sign. No other symptoms

Hi, My name is arron, 24. I'll keep this short. I've started having a sensation, every time that I bend my neck almost. It's like a very prominent shock, like a vibration of electric shock, down my back And into my arms. It's hard to describe very accurately. But it's very noticeable. I first noticed a few months ago. At the time I had be doing quite physical martial arts, such as bjj. So I thought It could of been caused by that. But it's still here and it seems to have spread to my right leg a little. I've been to the doctors and they haven't really taken much notice of it. They seem quite perplexed by the symptom. I have looked into the phenomenon myself and the word lhermitte's sign and ms keep cropping up. Lhermitte's sign seems to fit the description pretty well. I am wondering if anyone thinks that this is ms related. I know other things can cause lhermitte's sign, but I don't think I fit the description. Any advice from anyone? Thanks

Stumbler

@Stumbler

@azzy , MS can be a notoriously difficult condition to diagnose. The symptoms that present in MS, e.g. L'Hermittes, can also present in various conditions. However, simple vitamin deficiencies can cause this. Have you had a blood test to check for deficiencies? If the bloods are ok, it could suggest something neurological, so you may be within your rights to request a neurological referral.

azzy

@azzy

That's for the replies. @orlando27 you said your lhermitte's sign was thought to be caused by sporting accident? Was that the case or was it due to ms? I've read a few things about trauma causing it. But usually the cases are from bike or car accidents. I don't feel like I've done any serious damage to it. The only thing I can say is that I never had a problem with this until I started doing lots of martial arts over the last 6 months or so. I had an xray a few months ago, I forgot to mention, and they called no action taken. Surely they would of seen any injury. Do you guys really think it could be from injury? Because that's what I'm hoping for. It's really starting to bother me now. I don't want to demand anything from my doctor, and try to avoid telling them that i've Googled my symtoms because I think they'll pass it off as anxiety or hypochondria. Feel a bit lost at the moment to be honest. I'm just trying to wait it out but it's not going away, and even feels like my right leg is starting to get the sensation and feel a little weak. I suppose I'm looking for closure tbh. The likelyhood that it's ms or if in being a hypochondriac. Can anyone tell me their experiences? Or if anyone had it but hasn't got ms? Thanks

azzy

@azzy

Ok. Thanks for the advise. I will stop researching lhermitte's sign now. I think I've read everything there is to read anyway lol. I am very anxious about this whole ordeal. It's just come out of no where and shows no signs of letting up. It's been a good 4 to 6 months at least. There's no one incident I can clearly say that I think has caused it. Only that it's come about the same time I started grappling often. That's why I think it's coincidental and am hoping it's related to an injury. I could swear that i've started having strange feelings in my leg or recent. Which further worries me. Usually the lhermitte's sign was localised to my body and arms/hands. My leg just feels like it's having spasms and weakness. Again, thanks for the time to read and reply. I will give it a bit longer, as my doctor suggested, and then go back. I am reluctant to ask for a referal though. Hopefully the feeling in my leg is unrelated. If I have any other concerns I will ask on here. One other thing. @orlando27 was lhermitte's your first symptom and it presented itself on its own?

cameron

@cameron

It's horrible to have a worry that won't go away. You're being very stoical about it, but I would guess it's seriously affecting your daily life. One of the commonest threads on this blog is how long it takes to get a diagnosis: some people wait years and it's not uncommon to hear stories of GPs dragging their feet. It's well known that making the MS diagnosis can be difficult but it seems to me that you could at least get your musculo-skeletal system checked out. After all, if it's a musculo-skeletal condition or injury, it's not likely to heal of its own accord if it hasn't done so by now. You may need steroid injections, physio and perhaps even surgery. I just can't see that anything is gained by waiting to get the ball rolling.....

Joojoo

@Joojoo

Hi @azzy I can understand your concern. I had the same back in 2005. L'Hermitte's was the first indication of my MS, although back then I didn't know what it was, and my Neuro didn't give it that name. Back then, I was a militant cyclist, riding 150 miles a week for a commute, and then more for fun on the weekend. My parents (retired medics) were convinced I had a lesion on my spine from all the cycling (that's when I felt the buzzing jangle most). This went on for a few weeks, and I wen to see my GP. Nothing else was investigated until a few weeks later when I was referred to a Neuro when the buzzing turned into a loss of feeling down the right side. Before my MRI scan, it had spread to my left side too. I was working in a lab on exotic animal viruses at the time, and that's what my neuro wrote down in my notes IN CAPITAL LETTERS, when we looked at my scan results. I only had two lesions - one on my spine, and one on my pons (brain stem). We discussed MS, but my clinical presentation didn't tick all the boxes for diagnosis at that time (the guidelines have since changed). I was discharged and recovered over a period of months. It took a few years for L'Hermitte's to disappear. Fast forward ten years, and I now have a diagnosis, thanks to optic neuritis, the occasional L'Hermitte's and a batch of shiny new lesions on my brain. Had I been diagnosed at the time, and put on disease modifying drugs, I might still have good vision in my right eye. Can I ask why you are reluctant to ask for a referral? We are so fortunate in the UK to have the NHS. It is there for occasions such as these. I agree entirely with @orlando27 - don't bother with waiting. I would ask your GP to refer you to a Neurologist and send you for an MRI - if only just for peace of mind.

azzy

@azzy

@joojoo I'm reluctant because I'm afraid they'll think I've been to googling symptoms like a hypochondriac and won't take me seriously. I've had problems like that with them in the past and even going to the doctors stresses me out. But I will go back and tell them I'm still having these symptoms. The doctor told me last time to wait and if it persisted that he would send my to physio. So I guess that's probably the next course of action.

cameron

@cameron

Yes, @Azzy, get to a physio. When my GP referred me (after saying she thought my symptoms were 'minor'), the very first question the physio asked after seeing me walk was: 'Have you had any problems with your vision?' At the time, I didn't see the significance of the question and when I asked her why she was interested in my eyes, she brushed it aside. Now I understand: - the way I was moving was an indication to her trained eye that it looked like MS. And unfortunately she was right!

Margarita

@Margarita

@azzy I used to feel exactly the same way about being a time-waster, making a fuss, insisting something was wrong - in no way helped by the fact that all of the doctors I saw tried to dismiss my concerns on at least one occasion. I've been looking over my symptom/appointment spreadsheet today and, in hindsight, those dismissals make me ANGRY. If my family hadn't forced me to keep pushing, I'd be waiting for my first MRI right now. Instead, I was diagnosed earlier this year and I'll be getting treatment around the anniversary of my first documented relapse. If it's not MS - lucky you! No more worry. If it is, early diagnosis is your BEST FRIEND - lucky you! Treatment. Stat.

ruggermad

@ruggermad

Hi @azzy The exact thing happened to me five years ago. It was my first introduction to the world of MS. I started getting a "buzz" run down my spine when I bent my head forward. I went to the doctor, had my back checked, x rays, etc, etc but didn't get any answers from the doctors who I saw. I knew something wasn't right and stumbled across the phenomenom on the internet. It was a pretty frustrating time as every doctor I spoke to dismissed it. A few months after the Lhermittes started I started to get the MS hug. I went back to my doctor who told me to take a hayfever tablet daily as he thought that would help!!! It didn't. LOL At this point I gave up going to the doctors, noone seemed interested and my doctor got the hump. I felt like a hypochondriac. This was the start of a dark episode in my life and the beginning of me being in limbo. It wasn't untill a couple of years after that when I woke up one day unable to move my right arm or control any of my fingers. It was only at this point that my doctor decided to investigate further and referred me to A&E. I then went to a stroke clinic, the doctor there ruled out a stroke but luckily decided to refer me for a MRI scan. The results came back with a diagnosis of probable MS. Which after further investigations I went on to be diagnosed with MS. Don't be afraid to ask your doctor for a referal to a neurologist. At least then you can discuss your concerns with somebody who knows about their stuff and not a General Practicioner (Doctor) who is probably more worried about his surgerys budget rather than the health of some of his patients. One thing I learned from this journey is don't expect answers immediately, its going to take time. Be in control though after all its your body. Good luck

cameron

@cameron

Well, @Azzy, I don't think you could get clearer advice!! Everyone here has been through the same thing and come out the other side. Time to get some answers and get your life back. xx

doh444

@doh444

Hi @azzy, sorry to jump on your post (not even sure if you look at this anymore!) but did you hear back about whether you have MS or not? I'm 25 and have exactly the same - Lhermitte's started completely out of the blue (no injury) but started from my knees down and spread gradually up to my lower back. My grandfather had MS before he passed away so I was aware of some of the symptoms, tried to tell this to my GP surgery but the receptionist wouldn't book me an appointment on an urgent basis and wanted me to wait weeks for an appointment. Rang 111 to get some help and they got me in for tests straight away, where the consultant confirmed Lhermitte's. I've now had an MRI and waiting for the results, but have started having muscle weakness even though the vibrations have stopped spreading and are no longer as severe. Just wondered what sort of response to expect when I see the neurology department in a few weeks for my follow up, whether there could be a different cause?