Odd numbness?
Hey all,
I’m glad to have a space to share our experiences. My heart is with y’all.
So, I had what felt like a minor relapse two nights ago and now it feels like my eyelids, the tip of my nose and top lip are like 30% numb... This isn’t a symptom I’ve read about before.
I imagine my neurologists would dismiss it and send me to some other specialist. In January, I told them about losing feeling in my penis and they said it wasn’t an MS symptom, “that’s the peripheral nervous system, not the central nervous system.” All sorts of sources validate my experience of that loss of feeling as MS, but I’m wondering if there’s something happening in my peripheral nervous system that might need a different treatment? Or is this something other folks with MS have felt?
Any thoughts would be much appreciated!
@wondermeant , the following will make interesting reading:- https://mstrust.org.uk/a-z/altered-sensations So MS doesn't affect the "peripheral" nervous system! Well, not directly. But, any peripheral neural messages to and from the brain have to potentially traverse areas of MS damage, which can distort the messages or even stop them getting through. So, thoughts? Avoid that Neurologist! Whatever happened two nights ago doesn't sound like a relapse. The following might help :- https://mstrust.org.uk/about-ms/ms-symptoms-and-relapses/managing-relapses
Your neurologist is definitely wrong about numbness in the nether regions. I just recovered from an episode of partial transverse myelitis and I was profoundly numb downstairs for a few weeks. Did you have accompanying numbness in legs and feet?