On the precipice
Hello. Newbie here so apologies if my post is a rambling mess. After developing a facial droop on the May bank holiday, I've gone on to have progressive numbness in my left hand and now arm. I saw the neurologist on Friday and he thinks he can see something on the ct so has referred me for an urgent MRI. His suspicion is this is a plaque that is MS in type particularly as I had a period of arm numbness six years ago which was put down to a trampolining class I had been going to which jarred my neck. When I'm not panicking about all of that I'm a mum to one year old twins and was due to be returning to work in a week to my job as a neuro physiotherapist.....so i know way too much about neurology for my own good. I keep bursting into tears and don't know how I will get through the next two weeks waiting for the scan and then the wait for results after that. I can't stop scaring myself of what my future is now going to look like and how I'm going to be the mum that can't have people round for play dates, that my children will have to become my carers and that I will have to give uo my career because I can't see how I can do my old job when I'll be helping people with the same condition as me.
How do you all cope? Is there anyone on here who was diagnosed with children a similar age who can tell me how you manage to look after them through the toddler years? I know I hVent been formally diagnosed yet but I need to know how to do things so that I can stop scaring myself with thoughts of all the things I believe I won't be Able to do.
Thank you for reading this far and for any advice you can offer to help sis frightened mummy
Hi @twinmummy and welcome. Right, first things first, sit down and breath. OK, you might have MS, but you might not. You're being looked at by the right people to get to the bottom of this (and I would hope that you are receiving exemplary care due to your line of work). We're complicated bits of machinery, so bear with the professionals to get to the bottom of this. If it is MS then you have to look forwards and not look at all your patients, who have been dealing with their conditions historically. MS is now a manageable condition. It is NOT an express, one-way ticket to a wheelchair. So, don't get caught up on horror stories from the past. Medical Science has moved on and is still progressing. So, keep breathing and try and recover your perspective. Let your medical colleagues do their job. Break out the wine and the chocolate and enjoy your twins. And wait and see how things pan out.
Thank you. I know I'm panicking myself into an early grave and it is truly humbling to hear you speak so positively. I've pushed to get an earlier scan privately mainly for my nerves and to stop me going completely cuckoo by over analysing every feeling or lack of. I know sensory loss is so subjective and I'm not helping myself trying to second guess everything. Thank you both again fir taking the time to reply.. I'll be back and I wish you both well on your journey xx