@shopaholic84

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shopaholic84

MRI Results

So I've just had my results from my 2 yearly MRI and its come back with no new lesions and no active brain inflammation. Which is fab news!! My last MRI showed no new inflammation and the few I had had nearly disappeared. I was on Plegridy but stopped it in March as it was making me very depressed and I was in a hole I didn't want to be in. My neurologist has suggested Copaxone but I am fully aware there are better treatments out there but obviously I don't meet the requirements. I'm now thinking the MRI may not have been strong enough and there is something going on they can't see even though I pretty much don't have any symptoms!!! Arghhh!!! When does the worrying stop. 🙄

cyclingrob

@cyclingrob

Brilliant news, that’s superb. Out of interest is getting MRI checks regional as I live in Gloucestershire and was told they don’t have funding for check ups on them? You can party in the sun this week with your great news. Rob

shopaholic84

@shopaholic84

Hi @cyclingrob. I'm not really sure. I just ask for an MRI and they agree. Do you see your neurologist regularly? I've been diagnosed for 4 years and I've had 3 so far. I've had 3 different neurologists so not sure if they like to do a MRI when they take on a new patient???

Stumbler

@Stumbler

@shopaholic84 , if the MRI and the Neuro agree that there is nothing going on. AND you feel fine, then just enjoy the good news. You don't want to spend your whole life, worrying about something that may never happen! :wink:

cyclingrob

@cyclingrob

Hi I've not seen my neurologist since 2014, I have 3 month appointments with MS nurse. I have an appointment in August so will ask about MRI, I have Ben on Tecfederia for a couple of years and luckily don't have any side effects from it. There are loads of DMD mentioned on here which I have never heard of before. Would my medication options change based on an MRI scan? Thanks Rob

Stumbler

@Stumbler

@cyclingrob , it is always wise to keep up to date with the latest treatments. You'll find this document useful for this :- https://support.mstrust.org.uk/file/store-pdfs/MS-Decisions-ALL.pdf MRI scans are useful for monitoring progress of your MS and reviewing whether your present DMT is effective. Whether there is a need for an annual MRI seems to be a judgement call, based on your view of your symptoms over the previous few months .

shopaholic84

@shopaholic84

I know what you are saying @stumbler but I have days like today when I'm so tired and everything feels a bit like "cotton wool" I start thinking perhaps there is something going on they can't see. They only did a Head MRI so could they be something on my spine 😏.

Stumbler

@Stumbler

@shopaholic84 , Fatigue and "cog-fog" are just ongoing symptoms. They are also warning signs that maybe you are overdoing it. Potential lesions on the spine would equate to lower body symptoms.

shopaholic84

@shopaholic84

I have had a lot of stress recently so it would explain the tiredness. Honestly if you saw me this afternoon scooting (on my child's scooter) to pick up my children up and then the minute I get through my front door I flake out.

Stumbler

@Stumbler

@shopaholic84 , stress is best avoided, or effectively managed. It just isn't good for our MS. And, we all have to do things out of necessity. But things have to be done, so the end justify the means. Be it riding on a scooter or taking a nap throughout the day.

Vixen

@Vixen

Hello @shopaholic84, yes, in my opinion, there is no greater effect on MS than stress, sometimes even if in small amounts. Also, try to look realistically at things. If this is is your reaction to a positive result, what will you feel like if a lesion does show up?! I think you need some distraction therapy, like a treat or something. To put yourself in a situation where you are so into something that you don’t even think about MS. Our condition is indeed a burden; we just need to think and find ways to lighten the load. I hope tomorrow is a better day x

shopaholic84

@shopaholic84

You are right. I'm not sure how I'd actually handle it if they did find a lesion 😑. I've alot on my mind with planning a wedding and normal children worries I don't have time for distractions but I need one. Even a holiday would be nice. Thanks for the motivating words of wisdom.

shopaholic84

@shopaholic84

@stumbler I have no time for naps with 2 children, work and a list as long as my arm of things to do 😣. I'm looking forward to my honeymoon when I can rest!

Stumbler

@Stumbler

@shopaholic84 , I appreciate that you have a lot on your plate, but you do need to try and schedule in some time for you. I'd like to think that you'd have some energy left for your honeymoon. :wink: