Questions
Hi all ,going to see my neurologist soon to confirm my PPMS status, my mobility status is 6.5 currently , ,anyone got any thoughts on what questions I should ask? No question is a bad question, feeling worried to say the least about this highly likely diagnosis but we fight to the end “right”
You could ask if you are eligible for Ocrevus? or for any clinical trials like Octopus. If you need a referral for neuro-physio / neuro-psychology / pelvic physio, good time to ask for it. maybe just ask what you can expect from care going forward - frequency of MRIs / neuro visits / MS nurse visits etc
There's also a FES at some hospital trusts. I'm told that I'll be going in 4 months to see if I'm suitable for fitting. Might be worth asking about?