@pauley 

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pauley

Thankful

Hi there, I just finished my 1st cycle of Mavenclad treatment...free now for 4 weeks before the next lot No real side affects...just a little exhausted...more than the usual kind I could feel burning sensation while swallowing the medication..make sure anyone taking this medication has plenty of water with them...as per recommendation.. It’s frightening to see how toxic the treatment is...I’m confident and hopeful Due appointment with MS nurse so hoping to get something to help with some things that continue to remind me that I’m an MSer. Stay safe everyone...face mask and safe distance as much as possible Happy weekend Paule
@chezy17

The tired feeling is normal, I felt that after I had my first year of it. Second year I felt alot better but then all this happened so mines playing up abit. Think it's the situation and not the meds but who knows 🤷🏻‍♀️. I think you have to be careful for a few weeks cos of your lymphocytes dropping but I'm sure that can be balanced with Vit D. I'm no expert but since my levels have been higher, I've not caught anything 🤞and mine were low after my second year? Anyone know if vitamin D levels do actually play a part?

@KCochrane-85

Hi I am due to start taking mavenclad in the next few weeks. Was diagnosed in April, which was a shock as I hadn’t been expecting it. There does seem to be the potential for a lot of side effects as it does seem very powerful. I haven’t heard anyone say how bad the hair loss can be. Has anyone experienced this? I have started taking a vitamin d spray every day so hopefully this will be effective.