@gates1989

Last reply

gates1989

After Lemtrada...

I just wondered what meds people may have moved on to if Lemtrada didn’t work for you. The only medication I haven’t failed was Tysabri, but I am JC+ and so was taken off after 5 years. I am due to have an MRI to find out if the third round of Lemtrada has worked and if it hasn’t, I was wondering what other meds people have tried. I’ve been on Gilenya already, so has anyone had any luck with anything else? Thanks

Stumbler

@Stumbler

@gates1989 , talk to your Neuro/MS Nurse about this and see if they would consider Ocrevus, one of the latest therapies.

1

Animalluver1984

@Animalluver1984

I'm currently on Tecifedera

Richelle

@Richelle

I also agree that you should talk with your Neurologist about Ocrevus.

gates1989

@gates1989

Thanks guys, how has Ocrevus been for you @Richelle ?

alephbet

@alephbet

Good morning. I agree with @Richelle et al. Ask your neurologist about Ocrevus. (I switched after taking Tysabri for three years.)

alephbet

@alephbet

And for me, twice a year is better than once a month. (And Tysabri didn't slow down new lesions on CNS per the last MRI.)

Richelle

@Richelle

@gates1989, it has gone well so far! I've taken it since March of 2020. It stopped the severe symptoms I was having. I am able to work without fear of a looming relapse.

gates1989

@gates1989

@alephbet did Tysabri make you feel better? I felt amazing on it and it has been the only treatment that made me feel like I didn’t have MS! So I am hoping to find that Ocrevus made people feel the same way

alephbet

@alephbet

@gates1989, Tysabri did make me feel better (after Avonex and Gilenya didn't help at all; I think I suffered the most taking Gilenya). But Ocrevus has made me feel even better. For example, I'm getting a bit of sensitivity back in my left leg that I'd lost with my first episode. I'm very happy with Ocrevus.

MintedMinders

@MintedMinders

@gates1989. Hi what made you say Lemtrada did not work for you? How did this manifest itself? More relapses or more disability? I had Lemtrada 4 years ago. Ok but lockdown and being made redundant 18 months ago had made me less mobile. Any other hope after Lemtrada?