@erinlidia

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erinlidia

Cannabis and MS symptoms

Hi all, I'm curious about your opinions and experiences around this. The B/F has smoked weed for many years. More recently, he started using a vaporizer instead. When he was diagnosed with MS about 3 weeks ago, he asked the neurologist if the weed use had contributed to the development of the disease. The neurologist said no, that in fact, he has patients that use it to manage the symptoms, like pain and spasticity, and that it might actually reduce inflammation. My B/F was wondering aloud to me the other day that maybe the years of use had suppressed spasticity for him. Earlier in our relationship, years ago, before the weed use began/increased, he often had random muscle or limb 'twitches' and occasionally full-body spasms out of nowhere, especially when lying down, almost like he just got shocked with a live wire. It used to scare the crap out of me when we were cuddling quietly together. He didn't have any explanation for it. It was just a weird thing that happened sometimes, totally out of his control. He had mild Tourettes as a child, so he may have attributed these spasms to that and just put it out of his mind. But now... We're both wondering if these spasms were actually early signs of MS. The spasms decreased significantly once he started using weed, and have been relatively quiet for years, except for about a week ago when he briefly had a few spasms in his hands. Anyway, that's our experience. I'm curious if any of you have other experiences with using cannabis to control MS symptoms, if it helps, if it makes things worse, if you have an opinion on it one way or another. Thanks all!

Stumbler

@Stumbler

@erinlidia , no personal experience to speak of, but Marijuana has been seen to assist MSers with spasms/spasticity. So much so that this product has been introduced :- http://www.gwpharm.com/Sativex.aspx

cherish

@cherish

@erinlidia Like @Stumbler I have no personal experience on smoking weed but am prescribed Nabilone' (synthetic marijuana). Not sure what the difference is between Nabilone' and Sativex but guess it's not a massive difference and it aims to do the same as one another? It took me months to get used to it as I couldn't cope to well with the stoned feeling (paranoia being the worst), but it was doing something for me in helping to sleep, pain, and general 'moveability'. My Neuro always 'hinted' so to speak about smoking it years ago without actually telling me to (if you get my drift). Good luck tho. Hugs ? ? xx

cherish

@cherish

I'm sorry... So my opinion is 'If smoking weed helps, then good on you'. Shame the controversy still goes on about legalizing cannabis for ms sufferers, as it seems there's plenty evidence to prove it has some worth. Maybe one day, hopefully xxx

Hoytfreak

@Hoytfreak

I'm going to ask my neurologist about sativex this Tuesday when I see him. I don't want to smoke it so I'm thinking sativex is a great option. I'll let you know what his thoughts are.

BrokenDancer

@BrokenDancer

I can't get Sativex prescribed but like @Cherish, I can get Nabilone - I tend to take a lower dose than prescribed as it makes me forgetful! It saddens me that I can't get Sativex, as the 'high' bit is removed so day-to-day it'd be ok. I have smoked in the past and couldn't do that and function properly. Sonia x

cherish

@cherish

Heya @brokendancer Do you know what the difference is between them both? Does sativex work better? I don't have a clue. Is it maybe bcoz you don't get such a 'stoned' feeling on sativex? I take 1mg every teatime but have took 2mg also. The pain team told me I can go up to 4mgs if I wanted! Sod that! Haha. ? xxx

BrokenDancer

@BrokenDancer

I believe Sativex would work better as it's a real cannabinoid and Nabilone is totally manmade & that irritates me, I had a few 'odd' symptoms when I started it (the giggles on the first ever pill was a shock) but luckily they settled down quite quickly. I was actually quite surprised that I was quicker on the 9 hole peg test! If I take 2mg a day, now 1 would be before bed as I know that 2 pills a day does make me a little spaced/forgetful. I have no idea how they make Nabilone? But I truly think that I'd be better on Sativex but the expense is the problem - I understand Nabilone is cheap as chips tho. It's a pain that we have to collect from the hospital etc. Are you the same or are you in Scotland? Sonia x

cherish

@cherish

@brokendancer So that's the difference! I never knew that. You mean you have to pick up Nabilone' from hospital? Now that's a pest! It's just on normal prescription here which I just order when I'm running out as per everything else. I know its a controlled drug like my oxycontin but other than that I just pick it up from chemist(where my prescriptions go). ? ? xx

cherish

@cherish

Sorry, yeah I'm in. Aberdeen, Scotland. ? xx

TracyD

@TracyD

I've had no experience with Sativex or Nabilione, Apart from the Lemtrada and 2 bouts of IV Steriods I've received no other treatment for MS or it's symptoms. I have my own regime of vitamins, minerals and HBOT once a week and it keeps everything at an acceptable level. While we were on holiday in Portugal a the start of May before Lemtrada, I knew I'd have to go twice as long as normal between HBOT sessions and was concerned about 'hitting the wall'. The neighbours of the house we rented were ex-pats who informed us having a cannabis plant for personal use is legal there, theirs (for arthritis) grew into a bloody big tree :-) they gave me a pot and said to try it .... I have to say the electric sensations in my left arm which drive me nuts were completely gone, the general aches and pains in my limbs was gone, the fog in my head seemed to hold off too. I didn't have much but it did seem to take the edge of .... or I simply didn't care as much - take your pick :-) I haven't done it here, I'm far too much of a goodie goodie but if I'm back in Portugal again I won't be worrying and looking for Dive Schools :-)

cherish

@cherish

I'm gonna think out aloud here. Wether sativex is better than nabilone' or vice versa, are they more effective than buying a bit of hash from the neighbour, friend, cousin etc?? I guess what I'm trying to say is bcoz I know nothing about this 'Brown lump' (lol) that ppl buy, is there a chance that there's some s**t in it that shouldn't be (to spread it out and make more ££)?? Hence even the man-made nabilone and the sativex could be safer and more effective than 'a half score'. Nothing against pot smokers, good on you if it works. And I truly mean that ? ? I wouldn't know how to make a 'Doob' but I guess it ain't much different than me making my wee roll ups, haha. Have a good day all ? Lisa xx

Stumbler

@Stumbler

@cherish , that is a very important aspect of "buying on the street". There is some pretty powerful stuff out there, which can actually cause psychotic problems, leaving you with paranoid schizophrenia. Take care out there......

erinlidia

@erinlidia

@cherish @Stumbler Very true, you don't always know what you're getting if you're not buying the regulated stuff, and there is that risk of psychological and cognitive side effects. In Canada there's a whole medical marijuana industry to get the actual plant prescribed. But smoking it is still pretty harmful, smoking anything is harmful! That's why I'm glad he at least switched to a vaporizer, where it's only water vapour that you're inhaling. Or you could cook it into food, and inhale nothing at all. But it's great to know that there are synthetic and pill-form versions of it that might help, I'm sure they can get prescribed in Canada as well. Worth looking into as it seems to help him and others. Thanks all :)

cherish

@cherish

@Stumbler Glad you got me there as I didn't know if I worded my text correctly. I just think about things like 3mnthly bloods etc and something showing up or spoiling/altering a prescribed drug that we use/need bcoz there was something silly amongst it. MS and Relapsing Polychondritis enough for me without schizophrenia. Guess if they just made the drug legal (hash) for certain illnesses etc then it would be 100% monitored so that there's no nasty surprises in it. ? ? xx

cherish

@cherish

@erinlidia Yeah, there's no harm in asking if he can have one of the two. No is the worst that could be said. Who knows, might even find it more worthwhile than hash, but again if the hash helping that's good news. Good luck erinlidia ? ? xxx

BrokenDancer

@BrokenDancer

Even if they made real hash legal for medicine here, I'd still only take it in the evening, I just couldn't work whilst stoned. I gave up smoking too, so I'd probably be eating it anyway. I stopped taking Nabilone after a really nasty fall. I went back to plan A (Baclofen) and it just got worse, in a moment of anger (read hissy fit) I took a Nabilone pill.... a couple of hours later, I was a bit surprised when I walked right up the stairs, lifting BOTH legs and NO dragging ;) I emailed the consultant a week later and asked if it was OK to take Nabilone alongside Baclofen? Needless to say, he was just happy I'd found the best balance for me. So he still prescribes it for me but yes, it's 'off-licence' here :) It doesn't eradicate the stiffness but it certainly does help. Sonia x

cherish

@cherish

Morning folks ? I guess hash/sativex/nabilone is gonna benefit some ms'ers but maybe not others. I think that some of us will encounter symptoms that hash is good for- but maybe some of us use it for symptoms it's not gonna do nothing for. Meaning for some of us the expectations of it is to high. Still say 'good on ya' if it's helping may it be legal or illegal. ? ? xxx

Hoytfreak

@Hoytfreak

I asked my neuro about sativex today and he wasn't really satisfied with it's results or the difficulty getting it. He prescribed baclofen because it has a good track record for the symptoms I'm having.

simone2

@simone2

Hi,I have started growing my own Cannabis to get the right strain for my symptoms to help with pain and spasms and also to sleep without getting high, Idon't smoke it but take it in a milky tea at night.

Kitty

@Kitty

I heard that if the Cannabis is naturally grown not the hydroponic type that it is safer (in respect to psychosis). I also have a friend who appeared to be having a relapse with numbness of feet for several weeks and really bad head pain. She had only 2 puffs of a joint that a friend gave her (who regularly smokes it to help with his MS) and after only 2 puffs...3/4 of her numbness disappeared and the head pain totally went away within seconds. Within the next few days the residual numbness went away. Note; apart from trying Cannabis once or twice in her lifetime she never smoke it..then tried it for MS due to hearing it can help. Further note her Neuro did not want to give her Methylpred for the relapse as she didn't feel it was bad enough to warrant same. Nevertheless the 2 puffs of Cannabis worked very fast compared to when she had a prior relapse and had Methylpred which still took weeks. Cannabis has been recently legalised in Australia for medical use. Getting medical marijuana may not be that easy.

Angela351

@Angela351

Hello everyone, just wanted to share my experience with marijuana. I have been living with MS ( the fucker would is slowly taking away my abilities) for 24 years and haven't taken any MS drug since 2002. I couldn't handle the side effects. The fatigue and the muscle cramps and body aches. Nevermind the bruising from the injectables. Nope all to much for me so I decided to deal with my disability on my terms. At present I smoke marijuana all day but I have different stains. My go to is green crack ( silly name ) this gets me moving and focused so I can start and finish a project. Then when back spasms or my feet burn I can sit and use my white widow ( much better name) this one relaxes my back muscles and help with pain when needed. Then at the end of my day I sit and unwind and turn to my Afghan kush. This one slows me down and lets me sleep thru the night. Now I know some will disagree with my method but after my last MRI my MS has not change in two years. Not better but not worse. I am a true believer from pain management to bone strength its all wrapped up with the use of marijuana. Full disclosure I also take 400mg of provigil for fatigue and I micro dose with mdma which also adds to my ability to move. This is my story not put up for judgment just my life as I choose to live.

raminazzal

@raminazzal

My family Dr prescribed for me CBD capsules.CBD is a component of weed. I take them regularly for pain relief. It even helps me sleep better. It doesnt cause a high. There is minimal THC to my knowledge. My dr also prescribed for me an anti spasmodic medicine called cyclobenzaprine which has helped me immensely. Leg spasms have been causing me lots of pain.

Bobbij

@Bobbij

@cherish @srumbler @erinlaidia Yes here in Canada now it's legal it is regulated in a few different forms, oil, paste that can be used for making things such as brownies, there are pills, chewable ones almost like a Gumby bear soft candy. It can be regulated differently in some provinces are alittle stricter, here in Northern Ontario where I live some cities it almost sold in places like corner stores but again regulated. Only ones really buying off the street are those that are looking for the big high, but there is so much shit in it now buying from the street is like a death wish. My middle brother 62 yrs old had second stage progressive uses the soft chewables, manages hisvpain pretty good and helps him to sleep. So it has its ups. Hope this helps anyone out there. Stay safe🙂