Denial? Confused!
Hi everyone,
Looking for some reassurance if thats possible! I was diagnosed just recently with MS by a neuro who referred me to an MS consaultant. Really nice chap but said that its difficult to get a clinically definitive diagnosis at this stage? Confused me a little so i asked was there a chance this is not MS - he asnswered 'No its definately MS but untill your next episode or positive test (im having an eye/brain response test soon) we cant formally say what type it is'. So my husnamd asked if it classes as a CIS, and the Dr said not quite as i have had previous symptoms but the 2 areas of inflamtion on my spine may have happened at the same time and so look like only 1 attack. (CFS was positive for O bands) He then sent me to meet the MS nurse who was lovely and gave me lots of info and treated me as though I have MS but Dr said he couldnt provide me with written confirmation as its not clinically definitive. So now i feel very confused as to whether or not I have MS. they say yes to me but it feels like they dont want to commit in writing? My GP is under the impression that i have it since my neuro wrote to him and included the words 'discussed the diaognosis of MS' - although my insurance company feels that wording is ambiguous and not a diagnosis in itself.
What do you guys think? Am i in denial?
Sorry for rambling post!
No it sounds like to me anyway that you have ms but they are not ready to say what type. There are three types R.R.P.P. Secondary and primary
Not sure what the p.p were for.