LDN
I know that this topic has come up before, but I looked 10 pages back and couldn't find it :(
I went to see a new neurologist today and I am very confident with him! He metioned LDN and possibly switching from Rebif to Tysarbi.
Nothing in the immediate future, it will probably happen within the next 6months to a year.
I was just wondering peoples thoughts on both?
I haven't been tested for the JCvirus yet so not entirely sure if I can switch.
Well, Tysabri seems to be doing well, although the JCV check and associated risk is a nuisance. LDN on the other hand is a cheap treatment. The drug is well out of patent so is available fairly cheaply. As there's not any money to be made out of this drug, there have not been many trials to prove efficacy. But, anecdotal evidence suggests that it may work. Here in the UK, it is difficult, but not impossible, to acquire LDN. A lot of MS treatments are "horses for courses", i.e what works for one doesn't work for another. So, you may have to be lead by your neuro......
ldn is the drug of my choice... sadly my leeds neuro rejected the idea... so im currently drug free and have just endured a minor relapse. i was given tablet steroids, but only took them for a day as i had managed to pick myself up on my own. [this time it worked it self out on its own]..... i am now approaching my first anniversary and i would say it has taken me about 10 months to get back to some form of being 'normal'. whilst im no longer afraid of what will happen next week, i am stricter or realistic with my capabilities. good luck xx