@ashleynw1 

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ashleynw1

Trouble walking with Primary Progressive MS

When I was diagnosed with MS in June of 2020, I could only walk for a few minutes at a time. I had steroids then which drastically improved my walking, but now I'm back where I started. I can just walk for a few minutes, and even that's a struggle. Does anyone have tips on improving walking? I'm terrified of being like this for the rest of my life.
@sugarplump

Hi, I was diagnosed with ppms in 2018 after several years of walking difficulties. Walking problems have always been my biggest(but not only) symptom. I use a stick now but i have just bought a rollator which i am finding easier but I cannot walk far as my leg gets heavy and my foot drop worsens. I have been having botox injections in my calf every 3 months and i am getting an ankle brace from orthotics next week due to frequently spraining my ankle leaving it very weak. My best hope is that things may stabilise for a while but my walking may carry on deteriorating....who knows....all you can do is try anything you are offered from orthotics. I have already tried an afo and a fes and neither worked for me due to altered sensation in my right foot and calf so I just plod along and hope for the best.....hope this helps. Karen

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@Vixen

Hi @ashleynw1, I don't have PPMS but to honest, they type of MS you have doesn't differentiate with walking difficulties. I'm not a science person but, in the face of my own difficulties, I try to remember that it's not my muscles/legs that aren't working, it's the signals getting through. So, it's important to keep your muscles as strong as possible. You could maybe focus on exercises at home to do this. I bought myself a pedometer and make myself do a set number of steps a day; this includes indoors, even if I do feel like an idiot walking round and round the lounge or up and down the hallway!

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