@abikeride

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abikeride

Noob question

Hey hey hello. I've been lurking around for a while and I'm very grateful for everyone who shares their experience. First off, I was diagnosed with ms four months ago and I started taking avonex. The first symptom was double vision on my left eye, and I received no treatment for this and it simply got better after a month or so. Now, about a week ago, my right eye started feeling sore. I thought I was just tired but then, last Sunday I noticed blurred vision. Like when you look into a bright light and you see black spots? But all the time. So, I don't know, since I'm a noob on this, if this is just a symptom and I have to wait it out, or is it a flare, or is it something else. I'm really confused about what to do. Also, it seems a little soon for another flare :( Any advice? Thanks in advance

Stumbler

@Stumbler

@abikeride , here's some detail about Optic Neuritis (ON), one of the presenting symptoms of MS :- http://www.mult-sclerosis.org/opticneuritis.html Unfortunately, MS does not work to a schedule or timescale. It does what it likes, when it likes. We just need to understand what can trigger our MS and how best to manage it. One aspect of MS management is "listening to our body". Our bodies will normally give us some signals that our MS is not happy. We should take notice of these signs and try and rest up and relax. Is it a flare? Well, only an MRI with contrast will potentially show MS activity. However, it could be a "pseudo exacerbation", a temporary worsening of symptoms caused by the activation of our immune system by a run-of-the-mill infection, e.g. a UTI. Or, it could be a temporary worsening of symptoms caused by heat sensitivity (https://www.mstrust.org.uk/a-z/uhthoffs-phenomenon). If it's a new symptom, and lasts for more than two days, it is wise to seek advice from your Neuro team. Hope this helps

Vixen

@Vixen

Hello, glad you're not lurking any more! Just to say, I was diagnosed earlier this year and was always very confused over what it means with new and old symptoms. I had a mini flare when I started treatment too, which could be related to your body's adaptation to the new drug. Anyway, in the beginning days I was often phoning my nurse but now, nearly a year later, I have gotten so used to the quirks and random weirdnesses that I rarely both to call the nurse any more. Which treatment did you start?

TonyMS47

@TonyMS47

There are so many common symptoms I haven't suffered from yet! (touch wood) I won't. Optic Neuritis is one of them. @Stumbler is pretty knowledgeable. I agree it is better to get this checked out and soon.

EdgarLeroy

@EdgarLeroy

It could be a new relapse, potentially indicating that the avonex isn't working as well as you need it to. It may be necessary to escalate therapy to prevent damage. Luckily, you are early in your disease, and there are better drugs now.

LukeRussell31

@LukeRussell31

Only last month I had my right eye go blurry, I felt a pain behind the eye then that cleared then all of a sudden I couldn't see out of my eye. I went to get my eye checked out and I got an appointment for the Neuro-Ophthalmology but my eye has just recently cleared and got better so I cancelled the appointment as they will only say it was the MS attacking the nerve. So it will get better but it will take time but try not to get too stressed as I'm finding stress is a killer for MSers.

Sonia1984

@Sonia1984

Honestly I have had three flares in under six months, I have never had optic neuritis with my ms. Hopefully this resolves fairly quickly for you and that you see a Neuro-Optgamologist for your symptoms. No stress is the main thing! 😊

helpjodxx

@helpjodxx

Hi I had double vision foin 3 months from Jan to mar and then it heeled but was very scary time V annoying I do get floaters though in my vision which are equally annoying, I had them checked out

helpjodxx

@helpjodxx

Also I meant to add if I was to do a very intense workout class my vision goes funny again due to my body reacting to the heat or for instance if I as rushing aoubd in a busy shopping centre getting all flustered 😩

abikeride

@abikeride

Hi guys, thanks for your responses! After reading I decided to call my neuro who told me I should get check out. So I'm currently at the hospital receiving my very first dose of corticoides! Yaju. All is doing well though. I had a MRI which showed two small active lesions, one in the optic chiasma that might be causing this problem. I guess in the future I won't get so alarmed by this small visits of the ms. It was probably stress, I'm learning to listen to my body. @kelics hahaha why do you ask? I'm really not, I suck.

abikeride

@abikeride

@kelics ahh pffft because of the "noob" hahaha. I used to play an online game. That's where I learnt the lingo. Do you?