Have hit a wall
I have hit a bit of a wall with my ms this week. I try to live in the moment, appreciate the small wins etc etc but all the things I can no longer do keep coming to the front of my mind.
I’m tired of taking so many medications. I’m tired of the treatment. I know how ungrateful that sounds because I know that it is keeping me somewhat mobile and stable - I’m just wondering….what would happen if I just stopped playing ball and started refusing treatments? How fast would the wheels come off? Does anyone else get these feelings?
I’m a few days out from getting my next treatment and I know my emotions go all over the place the week before treatment . Does anyone else get like this before treatment or am I going completely mad?
I hear you! Finding the same atm
I don't think you're mad at all! I do have similar feelings. I veer from defiance, to acceptance, to despair, to fear, to self pity, to weariness of the whole shebang. I'm grateful for treatment and monitoring, mris and appointments, but at same time resentful of the intrusions! I understand how you feel about taking lots of meds, it's difficult not to wonder what they are affecting and whether they're worth it isn't it? I'm in between DMDs just now. Perhaps it is normal to feel up and down when your next treatment is due, maybe that's an effect of Tysabri? Not a very useful answer I know but just wanted to respond.....hope your next treatment goes well