@Walkintothesun

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Walkintothesun

Exercise and diet!

I'm still quite new to this so please excuse my ignorance in advance! I'm waiting for my MRI it's been about a 3 month turn around with a misdiagnosis of vit B12 deficiency at first to now being a MS diagnosis just needing confirmation with the MRI! This came on very suddenly no warnings at all, literally 3 days before I was smashing my weightlifting personal bests and getting pretty good at it to now being so weak and can't use my right hand to grip! I'm keen to get back into fitness, I understand throwing weights about isn't ideal at the moment so when my legs are having a good day I'll have a little jog but that doesn't seem to be often! Any tips on what works well exercise wise, and does diet really help? Thanks :)

Stumbler

@Stumbler

@walkintothesun , diet is an interesting subject. There are some members who have fairly rigid diets, who have good results, and others that just believe in a healthy, balanced diet. But, with MS, everybody is different. What works for one may not work for another! The best way forward is to use a food diary. Record what you eat, then if you feel worse one day, you can look back to see what you've eaten that may have caused it. As far as exercising is concerned, we do have a battle with fatigue. This isn't just getting tired. It's like an immediate depletion of energy levels. So, we have to be aware of that issue. Moderation is key, so push yourself by all means, but do it gently and gradually. You may also find that an increase in body temperature may now be "unwelcome" and cause problems. Something else to consider when going for the burn! Swimming is good exercise. It doesn't put too much strain on the body. And, it manages your body temperature. :wink:

hollylb10

@hollylb10

I have found that diet has been very important to me. I started a gluten free vegan diet and I improved so much, I have recently slacked off it a bit as being on holiday and all the temptations there are I eneded up scoffing bread and ice cream! I am still vegetarian though. I have further tests and a meeting about what treatment to take next week, but one things for certain is I am getting back on my diet as the fatigue and aching is all coming back!

cameron

@cameron

Some MSers can point to specific diets which reduce or improve symptoms. When I thought this way, I tried all manner of exclusion diets, and found they had zero effect. However, the evidence linking other conditions you may have to live with (so-called 'co-morbidities) with worsening MS is strong. As I understand it, if you can avoid developing e.g. high blood pressure, heart conditions, diabetes etc., your system is best placed to 'concentrate' on the MS. If, however, the body is coping with anything else, there is not enough capacity to manage the MS and it worsens. I'm not explaining this scientifically but you can read it up in various past blogposts on this site. You can see this on a small scale quite easily: - if you get flu or a cold, you may well notice your MS flares up. It isn't a relapse, but it feels like one and only recedes when you're rid of the infection or virus. I'm of an age (65) when co-morbidities tend to kick in, so I'm ultra-aware, but I know that the majority of newly-diagnosed MSers are far younger. They're not going to be thinking of old-age diseases in their day-to-day life! If you can get your head around this, it may help you to decide what to eat and how much to exercise. As @Stumbler says, there may be limitations on what you can do physically but generally just think of achieving 'optimal health'. We all know that doesn't mean the chocolate biscuit diet!... but think too about stress reduction, enough sleep and a fulfilling social networks. xxx

simone2

@simone2

Hi, I also don't have gluten,keep to a strict no dairy,low fat intake also take lots of supplement and most days feel really well, I take Spiraline for fatique which really helps

behnaz

@behnaz

I myself don't use red meat as it makes me dizzy. I try to eat a lot of veg, low fat, low sugar, less salt. Drink a lot of water, and fruits. I also go to gym, long walks when my left leg is good and also do some yoga. You will get the idea of what is good or bad for you. For example once I had shisha and end up in a really bad situation that my whole body was shaking and I felt stressful and couldn't walk so I quit everything related to smoking. Hope you feel fine.

Walkintothesun

@Walkintothesun

Thank you all so glad this site is here. I am a smoker but very few and also been advised to not quit until I'm a little less stressed. Just finding the exercise part the hardest I was working out 4-5 times a week plus jogging as well. I'd also started entering competitions with my weightlifting so having to stop all together and and putting on weight has really knocked my confidence! I really don't know what to expect have my MRI next week and have been warned that because it's taken so long to get one it might not pick as much up and further tests needed, I thought my 3 months was a long time but reading some other posts sounds like I've been quite lucky! Just can't wait to move on with it and gain some confidence again! Really appreaciate your responses!

Stumbler

@Stumbler

@walkintothesun , try not to get too caught up in the "what ifs" and "maybes". We should never allow ourselves to worry and stress ourselves about things that might not happen. :wink:

naomih

@naomih

Hi @atwalkinthesun, cant offer any diet advise as I don't follow one! However, exercise I can talk about!! I pulled out of a half marathon as I now find walking/ running in a straight line unachievable, I swapped running for a step machine as I can't trip over on it!. Rowing was my favourite and was doing 5k a visit, well that doesn't happen as I get pain and dizziness, but I can cycle! I was referred to the neuro physios as I had some major arm limitations and my range of movement changed within weeks! Its a bit of common sense, or if your like me, find out the hard way of the symptoms before the world moves in an unfunny way. I would definitely ask to see the neuro specialist to discuss ways that you can minimize injuries and suggestions moving forward. Like you are already aware its easy to pile it on, think of safer alternatives, machines rather than free weights if you gym is kitted out well. ***neuro physio,not consultant

Walkintothesun

@Walkintothesun

Thanks @naomih I'm very much the learn the hard way kind of girl! Super stubborn, mobility in my hand means I still have to have people cut my food for me or tie my shoe lace but in my head tomorrow I will wake up and be able to lift again... And I will even if I knock myself out in the process just will take a long time! I'm not sure if you can see this video but it's me lifting -10kg of my body weight 2 days before my first symptom started https://instagram.com/p/3etP61Dhs-V1xrVt1N609IX3rkrIZnm0UQ6a00/ determined to get back to this point! What do you use for arm excersises? :)

lilbird

@lilbird

Hi @walkintothesun Your video looks amazing! I'm so sorry to hear what you're going through, I'm recently diagnosed myself & my main symptoms are the loss of use of my hands & arms so I get the frustration with having someone cut your food up etc. Never in my life have I been even remotely close to the level of fitness you'd achieved pre your symptoms so I can only imagine the sense of loss that brings but can thoroughly & completely understand how big an impact comes from the many things that become impossible to manage alone without proper use of your hands! Best of luck with your MRI I hope you don't have too long to wait :)

naomih

@naomih

That is an amazing video, I have always looked a little enviously at the girls doing weights. I'm lucky to be able to use 2kg dumbbells as my shoulders seize up. I do a few basic arm machines exercises starting on a whopping 25kg!! I can imagine how scary this must be for you, and the ridiculous thing about ms is that you really could wake up feeling fine tomorrow and I hope you do.

Tabbycat

@Tabbycat

Number one is don't give yourself stress, about diet or excercise or anything else. Number two is don't eat any processed crap food. If your great gran mother would not have recognized it as food, don't eat it. That leaves plenty of good meat, veg, fruit and even a home made cake or two with a glass of wine to enjoy.just stop buying anything ready made or processed and your diet will be great. Your great grandmother would not have recognized gluten free flour by the way! Then do as much excercise as your body will allow, do not push it! Take a good multi vitamin. I take MSSENTIALS that were designed by an ms sufferer to give all the goodies we need, so I don't have to stress about them. Get lots of sleep. Good luck!

lilbird

@lilbird

Hi there @Tabbycat What is/are MSSENTIALS? I think I may have seen them mentioned before (possibly by you?) can't be sure. Combination of foggy brain & spasticity in hands means that keeping track of all this new info is difficult & taking notes not really an option as I can't hold a pen & typing is slower than I need it to be to have remembered the thing I was trying to write! :/

Stumbler

@Stumbler

Here's the details of the MSsential multivitamin supplement :- https://www.mssential.com/

lilbird

@lilbird

Thanks as ever @Stumbler! Have you tried these? Curious to know how they are & what they offer from a personal perspective :)

Tabbycat

@Tabbycat

Hey Stumbler gets there quick! I don't know if they really work. You can't really tell with vitamins, but I know I get less colds than I used to and all the vitamin b12 in them keeps the Mosquitos away. The turmeric ( curcumin) turns your pee yellow too, but you get used to it!

lilbird

@lilbird

Yes he's fast & well informed :) Does B12 offend mosquitoes then? Not familiar with that one. Think I could cope with yellow pee in the face of all the other scary stuff that MS may or may not have to offer!

lilbird

@lilbird

Thanks @orlando27 Might be worth a look at investing. I do most stuff on my phone (similar principle) I find it helps that I can position it where I want & sometimes if necessary can move it towards my finger, rather than the other way around (does that make sense) Phone has it's limits though so I think you could be on to something. One thing that helps is the autocorrect which picks up where I miss & hit a neighbouring letter & also speeds things up considerably by guessing ahead what I might be trying to type. Of course there are times where this works against me & turns perfectly nicely typed sentences into complete rubbish so always best to double check & proof read before pressing send! :D

lilbird

@lilbird

That sounds good, I'll have to start looking into it. The larger keyboard sounds good, on a bad day trying to coordinate my fingers to aim where I want them & not several inches either way is all but impossible & the novelty of deleting & retyping over & over again wears off sooo fast. I must also add that I find your outlook & attitude quite inspirational @orlando27 having read a lot of what you are dealing with, my problems with stiff hands, fatigue & having to learn to let other people do everything I can no longer manage & let them do it their way, seem pretty small. Even if they are doing it wrong (ha ha) I think I can pull myself together & deal with this new life. Lots of tough decisions ahead I think.

lilbird

@lilbird

Hi again @orlando27 I hope you're having a good day. I had written out a long reply to your post but somehow managed to make it evaporate rather than submit it. :-/ Must be my dodgy typing abilities :(