Starting Ocrevus. Petrified
I'm starting Ocrevus at the end of November. I'm bricking it, I always get side effects, I had the covid Jab last week and it knocked me about, needed a day off work! I'm a single mom of 3, eldest is 20 and at Uni, then I've got 14yo and 8yo boys, the youngest is autistic. I really don't know how I'm going to cope (afford!) If this drug makes me ill and I need time off.
If first dose, they should only give you half to start than I think 2 weeks later the 2nd half. Most people sleep while hooked up due to the Benadryl they give you (2 pills) wake up feeling okay. The 2nd treatment is a full dose and I fully recommend taking the Benadryl to sleep. I felt very groggy and kinda of out of it when woke up had a great sleep that night for work the next day. If have a good friend recommend they drive you and take the kids that night. My 3rd treatment ( full dose ) is November as well, going to put it off as I have had relapsed 3 times since my 2nd dose, progressed fast from RRMS to Secondary progressive MS. Stay strong and don't let it beat you.
Ocrevus has been my saving grace. Half doses went well. Just tired and had a headache. First full dose was a couple weeks ago and the fatigue knocked me flat for a few days, but I am fully functional and saw a huge improvement in my symptoms. Ocrevus has helped me so much. My co-worker who also has MS recommended it because she too loves it. It’s definitely scary going in/starting, but now I look forward to my infusions because they help me so much. Lots of sleep, bring snacks, drink TONS of water, and something to do. You got this. 🧡