@Sauce56

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Sauce56

Optic neuritis..pleeaase someone reply 🤞🏼💜

Hi there! I hope this is okay to post! I have optic neuritis, my sight has come back (the colour isn't AS good as it was) but it's still abit painful and I see flashing and black spots. It started with my eye twitching for well over a month, then it stopped and this developed. Today it's been about 4 weeks since it was diagnosed and the twitching has come back, not sure if it's anything but it's bloody annoying. Anyway since I was told I have optic neuritis, it's all I can think about. I looked into it when I got home from hospital and it said it's usually the first sign of ms. I have no been diagnosed with ms (I'm going back at the end of April) but I have been reading about symptoms and it's just like a checklist. All the things I have which I thought were probably normal or getting old (I'm 30🤪) are symptoms and I'm concerned that I may have it. has anyone had optic neuritis as the first symptom? Its more the not knowing which drives me mad, and I have read the diagnosis can take years! hope this is okay to post. Thankyou in advance x

HayleyJC1988

@HayleyJC1988

Hello @sauce56 I was diagnosed after optical neuritis in November. Had an mri and told I had MS last month. My vision is still fairly poor along with headaches and flashing white lights when I close my eye at night and black floaters when I'm tired. I still have sensitivity to bright lights. You are in the right place for support. If you want to chat privately drop me a message. Best wishes xx

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Adriftinthewood

@Adriftinthewood

Hi @sauce56, I had optic neuritis as my first symptom. It started with double vision then got better, lost sight in my right eye then got better, then lost vision in right eye again. It got better but I was then diagnosed with MS. That took approximately 12 years but medicine technology is much better now and diagnosis are a lot quicker. Optic Neuritis is a condition in its own right so doesn't mean you have MS. For me I had other symptoms as well (pins and needles, loss of feeling etc) which made MS more likely before it was finally confirmed with an MRI scan. I still get some issues with my eye and found an eye patch helps (plus you get to pretend you're a pirate), but mostly it's okay. I do wear glasses and need a stronger prescription for that eye but it seems to be much a more manageable symptom once it settles down. Good luck with your diagnosis.

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Sauce56

@Sauce56

Thankyou! I don’t know how to reply exactly to you adriftinthewood ! Yes I have heard ON is can be just that and not ms. Yes I wear glasses and my eyes have got worse over the years and I’m wondering if not it’s connected?!

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CharlieBug

@CharlieBug

I've had optic neuritis 6 years ago and currently going through it again, started back in January been diagnosed since. It is the worst, sorry you've got it. I don't know if it's just psychological but I've been taking turmeric for the past couple of weeks and has improved dramatically. Hope you can get some clarity soon.

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Sauce56

@Sauce56

Hi @CharlieBug I didn’t know you could get it more than once!!! That’s crazy. It’s so annoying, I’m glad my sigh came back near enough as good, hated not being able to see. Iv heart turmeric is good for all sorts so that’s good!! Thankyou so much x

Stumbler

@Stumbler

@Sauce56 , these bodies of ours aren't built to last, are they? 😉 Optic Neuritis is a condition in it's own right, but it would have a cause. When they look into your eye with that "torch-type" device, they should be able to see any damage to your optic nerve. Dependent on what they see should result in a referral to other services, e.g. Neurology. There should also be a report sent to your GP. So, they may know where this is going..... Which Department are you due to go back to in April? It's too early to be thinking of MS. This is where Dr. Google has a lot to answer for! But, if it should be MS, this is no longer an "end of the world" condition!

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Sauce56

@Sauce56

@Stumbler hi Thankyou for your reply!!!! I am going back to eye area in the hospital...not sure what it’s called 🙈 So they will know just from having a look, that’s good! Thankyou ☺️