We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2024 Shift.ms

@S_777 

Last reply

S_777

Annaul Neuro review for ms

Hi All I have found since dx of my ms my neuro appoints have always been a rush I have always let him take lead. Until last time in Dec I had questions I didn't feel were answered. The reviews are still by phone call I havent met the ms nurse to date since diagnosis I am abit fed up. His letter back to me is vague. I have seen people receive detailed reports. How do you find yr review and follow ùp letter from the neuro? I was thinking to write to him regarding my disagreements on certain points lacking clarity to provide clarity. I dont want to get on his bad side but I think it's ridiculous. Thanks Sam x
Manchester, UK
11
@Criscross21
@Criscross21
 

I think this is too important of a relationship to settle for cursory review by phone. I usually see my doctor for a solid 45 minutes to an hour. He shows me the recent MRI in comparison with the older MRI. He listens to my issues and he educates me on new developments. He runs through the typical in-office testing (balance, strength, eyesight, walking). I really think as soon as you feel disconnected with your doctor, it’s time to find another. I hope you have other options close to home. Yes, I always can get online through the Patient Portal and view my reports, test results and office visit summaries. Best of luck. Don’t worry about hurting his feelings. If he had more feelings, he’d be giving you better attention. 😉

1
@mutley64
@mutley64
 

Hi @S_777 I wondered which hospital you are under as I note you live in Manchester , as do I ? Your Neurologist should answer any questions you have , however, as many of us know , they can be very non committal and don't often come across as particularly helpful at times. I would usually raise any questions with my MS nurse or my Neurologist Secretary if I wasn't satisfied. You are absolutely entitled to raise any issues and if you put it in writing they can't ignore you. I'm under Salford Royal but usually see my Neurologist once a year at Fairfield Hospital. My appointment lasts between 5 and 10 minutes and could be done over the phone really. My first report was detailed but I only get a few lines now and my formal diagnosis was made over the phone. I have an annual telephone consultation with my MS nurse which can last up to half an hour and I have found I get more help from them. My annual report from them has been fairly detailed with action points for any help or treatments I may need. You can also contact them and leave a message and usually they get back to you within a few days.

1