We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2024 Shift.ms

@RebeccaR07 

Last reply

RebeccaR07

PLEGRIDY Injections

Hi.. I’m currently on plegridy injection, does anyone else have varied side effects every time you inject (fortnightly). Some weeks I’m fine and other weeks I have flu-like reactions and massive headaches for days and it wipes me out and I’m bedbound because of the side effects. Thank you
3
@embroideress
@embroideress
 

@RebeccaR07 Oh yes! I had Plegridy injections every two weeks for 7 months. Sometimes it was ok, I could get up the next day do normal things. Then others, as you say, I was wiped out. I'd be sick for 72 hours. Headaches, body weakness, chills, and I began to get weird effects like being out of my body (sounds strange? It was). The neurologist noticed I was not myself, and she switched me to Avonex, weekly injection, lower dose.

@Stellabelle
@Stellabelle
 

I have been taking Plegridy for 3 or 4 years...rebif before that, and Avonex before that. (It's been a long road). I love the Plegridy for the long time between injections and the fact that I'll stick with it, but lately, I've noticed that I get a migraine after my injection. Sadly it's taken me like 6 months or more to finally figure this out! ( I inject on Friday, we go out with friends on Fridays...I was blaming the alcohol) I see my Neuro next month but my dilemma is do I stop the Plegridy or do I suck it up and deal with a migraine every other week?

1