Not diagnosed but going through tests
I guess I wanted to share my symptoms and ask if anyone had similar situation or if they were wrongly diagnosed initially.
My neurologist seen me the other day in clinic and said she thinks I could have Functional neurological disorder (FND) but my gut tells me it's ms. I'm praying I'm wrong but I just have a feeling. I have got past medical history of auto immune conditions and flare ups and all sorts but this last year somthing has been off. She said she will do a nerve conducting test and mri so heres hoping this doesn't take long, feel so lost because I don't have a diagnosis to be able to reach out and get support as such. My symptoms are ( get ready 🙈)
●constant Muscle twitching, thigh, upper arms, lower leg, face chin cheek, hand, bottom lid of both eyes.
●Vibrating sensation in the core of my body and legs
●Heavy legs &arms
●Fatigue ( extreme when it hits)
●Cold all over even if its roasting hot in environment, can come quickly and leave quickly ( that cold that i get goosebumps and feel ill with it)
●Hot flushes ( not as often as the cold turns)
●Feeling of generally unwell can come out of knowwhere.
●Severe occipital headache and cramp
●Brain fog
●difficulties articulating myself when in a flareup of symptoms
●Pins and needles down leg into foot
●Cramp deep in muscles
●Feeling of leg weakness (jelly like sensation) can effect both legs but feel more in left.
●Eye pain feels muscular
●upper and lower back pain
●crawly feeling under skin
●sharp pain up side of head and sometimes other parts of body
●alot of noise and visual stimulation can make me feel wiped out and bring an influx of symptoms .
These symptoms can come on for no reason with no pattern they can also be triggered by me doing too much ( a 12 hour shift) or emotional news or short illness. They themselves to come in waves lasting a day or two sometimes a few weeks but I've also had times where they have lasted a few hours and left.
Thanks for reading this absolute essay 🤣🙈
I’m sorry to read your experiencing all of those symptoms. Short answer, yes, all of those symptoms fit into MS. Unfortunately, there are lots of other overlapping and mimicking conditions that makes diagnosis tricky. Do you feel that your neurologist is being thorough with testing and taking your concerns seriously?
Hi, Nicole, my name is Dan and I am brand new to this site. 👋 I was diagnosed back in 2015 while being active duty Air Force. I’m really sorry you are experiencing all of those symptoms, that sounds just terrible and I know it can be really hard to pin down exactly what’s going on because things seem to change minute to minute or hour to hour… I was lucky enough to be active duty, like I said, when I experienced my first significant relapse so I was able to see a neurologist pretty quick. And I was “lucky“ in that both my brain and C - spine scan (neck) had very visible lesions all over, so the diagnosis was pretty straightforward. What I have seen in the online MS community is that folks who aren’t lucky enough to have the sort’ve socialized medicine that military service grants you, end up having to fight in some cases for years just to get their diagnosis . To the point where they’re celebrating getting their MS diagnosis just so they don’t have to live in confusion. Another thing that I have seen in discussion boards are accounts from people saying that there are doctors required spinal taps in order to give them a concrete diagnosis. That sounds awful to me, but I think we also know there’s no way in hell that’s gonna be very cheap . So, I know I’m just rambling right now but I said all of that just to preface my one point that I make to everyone when speaking on the subject , and that is to go ahead and start living your life as if you do have MS, or some similar auto immune disorder which may have many of the same triggering factors. The most important aspect of this is absolutely diet and not necessarily exercise in the traditional sense, but just making sure That you continue to move your body as much as you can. As I said, I was lucky enough to get on medication within months of my first extremely severe symptoms back in my 20s, but really taking my diet seriously in my 30s is what I believe has helped halt progression. Anyways, I know I didn’t really bestow extremely helpful info here, but I hope you can focus on these things that I mentioned and maybe find a little relief until The doctors can provide you some more solid answers. Very Respectfully Dan