@NicciS 

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NicciS

Gilenya stopped :-(

I'm so gutted. Got a text from my MS nurse on Friday telling me to stop taking Gilenya immediately. My lymphocytes have been at 0.2 or below since before Xmas. Blood test on Weds last week showed them at 0.15. I'm so disappointed because although I've had a few weird symptoms, I've felt so much better in myself since starting Gilenya than I ever did on Tecfidera, and now I've got to venture into the unknown again and try something new. Anyone else moved from Gilenya because of super low lymphocyte levels? What did you move to? What are your experiences? Tell me sonething that will make me feel better!
@laurianne25

@niccis, I'm sorry you are being made to stop! I am new to MS just diagnosed in February and im not on treatment yet, but I know there are plenty others on here that have been through this and can give you good advice! I hope you can feel better soon.

@Stumbler

@niccis , use the Forum Search function (magnifying glass, top left) and search for "Gilenya lymphocyte". You'll locate a few previous posts on this aspect of Gilenya. 😉