How to handle people?
Hey. I’m new to the group and wanted to ask how you guys cope with people. I have not been diagnosed yet but I do have an oncoming appointment with a neurologist. I had to visit a new primary doctor after moving and needed a new referral. I felt terrible because this new doctor said that she was only giving me the referral to basically shut me up. She said I was probably exaggerating my symptoms and that the symptoms I described could not be that bad. I’m unsure how to deal with these types of situations because no one can really see how terrible I feel some days. My limbs are heavy and they ache all days. I have muscle spasms on my legs and arms which are incredibly painful. I do not know how to handle when people don’t believe me especially since my symptoms started randomly only a few months ago. Any suggestions?
Hi, sorry you having problems, I've not had problems like you are having but I did have a neurologist who spoke to me like I was stupid when I refused meds because I was having terrible side effects' I noticed you are only young, I am 61 year's old so had year's of shouting at doctors😠 have you not got anyone who who can go with you to see your doctor for a bit of support? I take my husband for support when I feel too tired to fight , can you find a better doctor? I now have a great doctor who I can talk too, hope you find a better doctor
Def find a new doctor if you can! Initially I was super dark at my doctor when I first went for my initial symptoms, she said “I don’t think it’ll be ms so you can relax there”, and weeks later after neurologist and MRI, it was in fact MS. I was fuming thinking my doctor was the worlds worst doctor for diminishing my symptoms and telling me it wouldn’t be ms, but when I went back to see her after diagnosis, she had told me how she kept reading up on my file so curious as to how I was and keeping track of how I was doing with the neurologist etc. I knew in that moment she was just trying to calm me down initially (I was quite worked up), and she did in fact have my best interests in mind, and I think that is so key for the person who is in control of your health records. When it comes to people in general, I am completely inept. I dislike most people and find qualms in everyone so I keep to myself by choice. Don’t be scared to see a neurologist at all. Mine was the most harmless and almost like he was more scared of me than I was of him. Anyone in neurology is kind of a little socially awkward and in turn “straight to the point”, which I prefer. I also felt really dramatic since a lot of my symptoms came at once too, but shock and stress are factors that trigger bigger flare ups so could also be a factor. Feel free to message me any time if you ever want to talk through anything more x