How do I explain?
I could use some advice / support right now! My husband really doesn’t understand that when I say I’m exhausted thats what I mean , not just tired, he keeps organising busy days on my days off work or when I arrive home from work at 7 pm, I know this sounds as if I’m being a bit mardy but I feel as though I dont matter, how I feel doesn’t matter and as if I’m a killjoy.
How does anyone else cope with times like this ?
I have RRMS and am always worried about taking on too much and causing a relapse.
@kazzybee , it's difficult for someone to understand what we go through when they don't have MS. Ask your husband to read this post, which describes MS symptoms in everyday language which he may be able to understand :- https://shift.ms/forums/topic/describing-your-ms-symptoms
@stumbler this is amazing thank you, hopefully hearing it from someone else may help too, I know he’s not being mean on purpose but he just doesn’t get it . Thank you for this 🙂