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@JuliaClaire 

Last reply

JuliaClaire

Changing from tysabri to lemtrada

Hi everyone, I gave birth three months ago which followed by the most sever relapse so this is at present is just a theoretical question but a realistic one. I am about to start Tysabri in 2 weeks time. It has been a VERY difficult decision to choose if I should opt for Tysabri or Lemtrada.To keep my options open and as Tysabri is time restricted due to the PML risk,wondered if anybody had first done tysabri and then Lemtrada. What the process was, how they felt and what the risks were. The whole shebang really. If there is anuybody out there who has done it i would really value their imput. Thank you loads!
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@Charliegirl
@Charliegirl
 

I went off Tysabri after having anti bodies to pml after 2.5 yrs...just had Lemtrada on the week of 10 August....had 2 relapses on Tysabri....almost to the 2 year apart....dont know about Lemtrada yet....apparently too early to see....be interesting to see what my blood test results show....first one after having Lemtrada....hope you make the best decision on what to do. ..

@Charliegirl
@Charliegirl
 

Had not 1 SE from Lemtrada....they were really surprised at the hospital...me too as I was expecting the worst....the 5 days of methyl pred kicked my butt the week after....no sleeping....mood more up and down than usual lòl....how long you had MS?