@Emma19

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Emma19

Got my MRI result today

So had my MRI on Thursday and was told 2-3 weeks for results. Neurologist called me today with results. She said I have multiple lesions and some of which pretty deep. She said my spine, cerebellum and something else was clear (can't remember the name). She said I'll have a lumber puncture on Friday but that's just as protocol and when I asked is there anything else it can be and that the lumbar puncture is just because she has to tick the box she said yes that's the reason she is doing it and she's sure it's MS... So it's MS. I knew it so why am I crying? Why am I questioning all the things I had planned in life for example trying for another baby after Xmas. And I'm just about to start a new job next week! How do I know which type it is? I wish I'd asked but I just didn't think of it at the time... My head hurts so much from all the thinking (and crying) I've been doing!

mammamoose

@mammamoose

It's always a shock even when you know what to expect. Try not to worry too much I know that's easier said than done . After all the tests they will be able to tell you more and you will also have a nurse that you will be able to ask about anything that's worrying you. Try to remain positive xxx

Stumbler

@Stumbler

@emma19 , you need a few days to get over this. We can do everything we can to prepare ourselves for this diagnosis, but it still hits hard. You need this time to put things back into perspective. MS is now a manageable condition, so any life plans/aspirations can still be achieved.

potter

@potter

Yea I cried for two weeks and then got angry decide to fight and do what ever I could to slow down with disease. I had been having symptoms for 10 years and couldn't get my doctor to listen. I also come from a long line of MSers in my family. I also thought I was prepared. Potter

funnybutnotfunny

@funnybutnotfunny

First, huge huge hugs. Please keep us posted about your LP. I have to do that myself when I can build up the courage. I'm interested to hear your experience of it. Huge hugs again. Check out the site active msers.

Emma19

@Emma19

Thank you for the replies everyone! I know it's manageable, it's just so permanent yknow? @funnybutnotfunny I will do. I'm a midwife so trying to think of it like an epidural...loads of people get one of those so hopefully it'll be fine! Also starting to wish I had one myself when I was in labour, would have something to compare to haha. When will you get your LP?

mammamoose

@mammamoose

It's not quite as bad as an epidural IMO but then again I wasn't in my 25th hour of labor! but it's not too bad not really painful at all, I think like having any sort of injection the anticipation is worse than the actual treatment.

Breezy19

@Breezy19

Hi @emma19. I was diagnosed just over 7 months ago and I felt the same - I knew what the diagnosis was going to be so why am I so upset? But there are so many things I wouldn't have done if it weren't for my diagnosis, and that's just in 6 months! I've joined a tennis club, which I LOVE (and from day one, it was the most awesome distraction from the thoughts running through my head), I've taken on new challenges at work just to prove that I could, and I've just bought a house. Because why not? ;) And most importantly, although I haven't told many people, I have been overwhelmed with the love and support from those I did, and found out which people in my life are the ones who truly care for me. There were many more than I expected. And if it weren't for the MS, I never would have known. Chin up. Do what you wanted to do. And have hugs....lots of hugs :)

Emma19

@Emma19

@mammamoose Yeah that's my thinking, im sure it'll be fine, once it's done it's done eh? @breezy19 thanks for the reply! Im glad you have managed to achieve so much in a short time. Work is my main worry as it's obviously 12hrs days and nights...and I'm just about so start (next week) in a new hospital so I'm worried how I'll get on (also doesn't help I've been off on maternity leave for over a year so would take me a while to get back into the swing of it regardless of this all going on). I'm glad your family and friends have been lovely to you. How are your symptoms now? Are you having treatment? Xx

KoffeeLover

@KoffeeLover

@emma19 welcome (!) to the club - I received my diagnosis on sept 1st following MRI to confirm what we already knew. I consider myself lucky because my MRI was so definitive I've managed to sidestep the LP!!! I haven't been given a type yet, I think that takes a little while for them to work out. In my area, you go to a general neurologist for assessment and diagnosis, and are then passed on to a specialist neurologist. I'm now on the wait to see specialist and MS nursing team. I've found the guys on here really lovely, positive, funny and supportive! xx

Emma19

@Emma19

@koffeelover I know what you mean about being lucky not needing LP. My neuro said there's nothing else it can be but ms based on mri but she is following diagnostic protocol...so I'll just go with it. I was just guessing I have RRMS since my numbness has gone, I thought PPMS would mean those symptoms would stay? But I'm confused by it all. I have tingling in my legs if I walk to fast and then stop and my tongue can be numb from time to time but not the facial numbness and arm weakness etc I had. Are bodyaches part of it? I wake up every morning so stiff and sore! My area is the same after my LP and other eye thing she wants to do, I'll have an appt with her to discuss all tests results and then will be referred to MS specialists. Also she is going to speak to a rheumatologist as my ANA bloods came back moderately positive at 1:640 and my mum has systematic lupus and my dad has lupus present in his skin...so now just hoping I don't have both!!!

TracyD

@TracyD

@emma19 A good cry is perfectly acceptable under the circumstances I think - although it's probably not helping with the headache xxx Some hopeful news for you (in the blackness of the whole being diagnosed thing) if you're going to be told you have MS then this is a great time to be told it (weird huh???) There are so many amazing treatments available now which can slow and halt the progression of this shitty thing giving you a great chance to protect yourself and your future. I've sent you a friend request, if you need to talk I'm happy to share contact details and be someone you can vent on, have an open chat with or just put the world to rights xxx

Emma19

@Emma19

@tracyd thank you! I will take you up on that offer...now just for me to figure out how to message you privately hahaha!!!

Breezy19

@Breezy19

Hi again @emma19. My symptoms have pretty much resolved for now. Mine were double vision and vertigo/balance issues and just an overwhelming kind of fog. It was like my head couldn't keep up with everything around me. Every now and then I get vague head spins, but I have no idea if it's the ms or just "normal". I'm on copaxone 3/wk injections. I work in a hospital too - in cardiology - and I like to think that by working in a healthcare setting, my workplace is more understanding of my limitations, if and when I have them. I hope your new workplace will be this way too!