@Dx24012021

Last reply

Dx24012021

Recent MRI confirmed diagnosis

I was diagnosed on January 24th. MRI showed numerous old lesions in brain- a mix of old and new as well as C spine involvement. I am 37, fit and healthy up until now. I feel like the rug has been pulled from under me. To the members of this community, what helped you cope, what advice can you give someone as early as I am in my journey. Thank you.

TommyK1487

@TommyK1487

Just keep doing what you can with it

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Joajoa

@Joajoa

I’m only a few months ahead of you, but similar story. So far I can offer, be kind to yourself and keep going on as normal as much as possible and you can’t predict your future, so don’t try

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mitch73

@mitch73

Its different for everyone but for me I carried on as normal.I took it really well unlike my family and I suppose I was in denial and 15-16 years later I suppose I still am..Learn to be kind to yourself and don't wallow in self pity.Its your journey and only you can help you. I can't overstate how important it is to stay positive even though you will have dark days at the start but these will get better.The thing that I nipped in the bud very early on was my close family and friends that where giving me loads of sympathy and pandering to me.It doesn't help. Surround yourself in people that don't talk about it unless you bring it up because that just drags you down.Learnt to laugh at your physical failings because you'll be amazed how much it changes how you feel for the better.

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Dx24012021

@Dx24012021

Thanks so much everyone, you're right @mitch73, these have been for me the darkest day.

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802strong

@802strong

Comment deleted.

802strong

@802strong

I have found meditation a great help: with reframing, with relaxing, with pain, with restless nights from various MS neuropathic pain (itching. tingling etc) Overall, I've learned lessening my stress helpful in managing my health. MS has also helped me let go of stuff easier - I don't waste my energy and time as easily now and have a better perspective of what (and who) is important to me (or not) That's been a great blessing. Finally, I stay active and engaged - MS doesn't define me. Decide who you want to tell and when - not everyone I know knows I have MS. Finally, I looked into OMS (Overcoming Multiple Sclerosis) It's not for everyone, but I found aspects of the programme very helpful and the community engaged and proactive.

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Stumbler

@Stumbler

@Dx24012021 , you're dealing with a huge shock, so sit down and breath. And, take this time to learn about this invader to your life. I know you're doing this already, hence your presence here. Just stick to creditable websites, e.g. the MS Society. In the meantime, continue to live healthily, eat healthily and avoid stress. The latter point is very important, as stress seems to cause unwanted MS deterioration.

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Vickyms

@Vickyms

Be kind to yourself, is the best advice. Give yourself time to recover, physically and mentally. I'm guessing you have had a recent relapse that was bad enough to get you an MRI. I had just started a new job when I was diagnosed and rushed back too soon. It was only 5 years later when I had time off for a different medical problem that I realised how different I could feel if I have myself time to rest. It is a battle to get the balance right.

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Talberor

@Talberor

I know the feeling. Please know you can get better better!! You can join this event where experts and doctors are going to share about creating better life with MS Www.healingmslive.com

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Tracey1982

@Tracey1982

It will take time to sink in with me about a year to accept it tbh but speaking to ppl who are in the same boat as us really helps! We support each other on here and also days where we need to vent! 😘

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MDD27

@MDD27

Sorry to hear this and know it gets better. I was a runner, very active and started having issues leading to a diagnosis in 2016. I felt fear and sadness and dove into learning about it. I'm a reader and focused on health. I consider it a journey and everyone can have different experiences. Keep faith and focus on what you can do not what you can't. That's my recent philosophy that's helping me anyway. Best to you.

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LHughes9

@LHughes9

Try your best not to think worst case scenario. I was diagnosed in 2010, like you fit and no previous issues. Many hiccups along the way but still doing okay. Your life will change for sure but stay positive and think positive. You will get to know your triggers and can adjust your life to avoid them when possible (I so miss hot tubs and hot showers). Adjust and adapt and hopefully MS doesn’t rule your life. What helped me through was carrying on as I always have. Over the years I have learned It’s ok to take a break or ask for help. I’m stubborn and didn’t always do that but I’ve learned to admit I can’t push through like I used to. Good luck and whatever happens, don’t suffer in silence. Reach out to family and fiends and if they don’t understand (many won’t and try not to be too upset) reach out to those that do, such as those of us on this site.

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Chrissywhatidid

@Chrissywhatidid

I'm truly impressed that you have the presence of mind to reach out so soon after diagnosis! It's been such a process for me, and I was kind of all over the place at the beginning. My emotions were all over the place. At the time, I was hard on myself for it, but looking back, it's just what needed to happen. It's become one day -- sometimes one hour -- at a time for me, and I've had to learn to take up a bit more space in terms of asserting what I need and doing what I need to do to be okay. I hope you can be gentle with yourself as you adjust to the new reality, and I'm glad you're here!

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Vixen

@Vixen

Hello @Dx24012021 and welcome to Shift. Everyone here has been where you are now, it's a nightmare isn't it? You need to make yourself your priority for now, and be kind to yourself while you come to terms with everything. Which you will. I see you're down for Ocrevus which is the newest, most effective DMD so that's great. We are all fans of YouTube clips by Dr Aaron Boster, as US specialist who provides uplifting and simple info about MS and related matters. Staying fit and healthy is key; diet, sleep and exercise. it's common to overdo exercise to prove you can still do it, but if you're recovering, you shouldn't overstretch yourself. Before my initial relapse which led to diagnosis I'd had no previous, and yet 'old' lesions were discovered, which was a shock. Some people are littered with lesions, some have few; there's no rhyme of reason, and it's impossible to predict how things will run. That's why optimising your lifestyle is key. Most people will say it will take p to a year to absorb the diagnosis. Don't stress right now about making plans for the future, try to centre your thoughts on today, and maybe tomorrow. That's why meditation helps some people. Oh, and don't endlessly Google; stick to sites like this, MS Society/Trust. Some hospital sites provide excellent info too. All the best, keep your head up and stay strong :-)

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Dx24012021

@Dx24012021

I just want to thank every single one of you from the bottom of my heart. It's been a dark few days and these messages are rays of light. I have my appointment with my neurologist next week with my neurologist and will be starting treatment soon. I will keep you all posted. Thank you for your kindness and support.

Terri1

@Terri1

Hey, I'm new here too as of today. I was told I had MS back in November of 2020. I am now 66 yes. Young. This isn't going to own me. I have too many things that I want to do with my life yet. Never give up nor never give in.

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Henrietta

@Henrietta

Lots of fantastic and supportive advice already given here so all I can add is try to set aside an hour or two each day when you’re not thinking about MS. (I found I was thinking about it all the time at first so had to carve out breathing space) And remember you’re the same person you were before the official diagnosis. As everyone says, be kind to yourself 🤗

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Debbie8

@Debbie8

We all give up when we first get the news...but it’s not a death sentence. Live your life, embrace every moment, eat right and exercise!!!! Xo

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jamoranto

@jamoranto

Looks like ur on the right medication. Just continue with the positive thoughts

random_ran

@random_ran

I drew a lot when I could. I even made a song about my diagnosis

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random_ran

@random_ran

Just do as much as you can while you can. Don’t take the small thing for granted.

jamoranto

@jamoranto

Let’s hear the song u wrote

juliet

@juliet

I agree with above comments. Do not let it rule your life. I was a serious, competitive runner. When I first got diagnosed I also had a large number of lesions on brain and c-spine. But I was still running quite well. So it does not have to stop your activities. I am mid-50's now. I still work out everyday in different ways. You may have "interruptions" because of it and change the way you do things, but just keep doing what you are doing - if need be you will adapt. You can stay fit and happy and enjoy your life.

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scribe

@scribe

I'm in a similar boat - very active, fit and well, then diagnosed in December 2020 after a relapse in the summer. I thought it was my first but now we think an episode I had back in 2009 was another. I had several lesions on my first MRI, waiting for the results of a contrast MRI to see if any are active and if there's anything in my neck before I start treatment. It's a headf8ck but I'm feeling positive that I'm just going to get on with life as best I can. We only get one shot and I'm going to live it. I get scared sometimes thinking about what might be in store for me in the future as it just seems so random what you're going to get, but I'm hoping that I'll feel less anxious once I start treatment.

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