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Rant re my neurologist

I have tinitus. Really loud in one ear. I have a mri booked for this. The neurologist does not link it to ms. It started when the optic neuritis ended. I started ms treatment July 2022 and as per procedure I should have a further mri. The neurologist was not planning on doing this until she confirmed with me that I started my treatment this year!! She asked....So she's going to use the tinitus mri for her checks too. I did challenge as it will be focused on different areas and nit include spine. But she reassures me my MS is minor with teeny tiny lesions. I will advocate for myself re the mri but always leave these meetings feeling like a fool that's made a mountain out of a mole hill. I find it hard to hear the positivity that my ms is very minor. Etc. Just needed to rant really.....thanks for giving me the space to do it.

There seems to be a lot of posts on tinnitus (if you enter that in the search icon 🔍 at the top). Not sure if that will help. Also: http://www.mstrust.org.uk/atoz/hearing.jsp


Tinnitus is a very common condition that many people suffer with, myself included. Due to a secondary or tertiary auto immune disorder; having lost count of how many I have now selfishly collected over the years, called Sjogren's Syndrome aka SICCA disease I have had to have multiple ENT nurse treatments which have left me with a permanent case of tinnitus. What is even more frustrating, aside from the fact there's a little that can be done to cure this annoyance, GP surgeries are no longer offering this service under the NHS and you have to initially go private. If you have enough visits you can then request a referral for an ENT consultant appointment. The best option is to look online for some home remedies and coping mechanisms but usually it self resolves within a short amount of time or is here to stay