Hi
Hi! I’ve been so miserable lately! 15 years since diagnosis & going down! Until now I was soo good! Can barley walk now... never been like that! Hate it! I’m tired of being tired!
So scared to end up on a wheelchair 😢
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@bogda_barva I'm not that much different to you. Been there and got the tee shirt..... I'm having my wheelchair fitted out for me this weekend... only been waiting for about 6 months for it. My plan is to set the speed camera off outside my house, while I'm sat in it..... what's the worst that can happen.... Life goes on, I try my best to see the humorous side of life every day, it stops you going mad. Promise 😄 Welcome to the club. Feel free to ask anything you like we'll try and find an answer one way or another. But above all else keep a sense of humour 😀
I'm at a similar spot right now at 15 years after diagnosis and 54 yrs old. Have been on DMTs effective for RRMS (Copaxone and Rebif) but now two Neuros agree that I am moving into SPMS. Therefore I should change treatment. I've been blood tested to see if I am a candidate for Ocrevus. Still weighing what this means for me. Also experiencing Meralgia paresthetica so got some Gabapentin and feeling better and walking better by taking 3 a day. Blood pressure seems up and after adjusting to the initial dose I seem more hyper than drowsy as I did initially. Welcome to the world of MS where your symptoms change daily! ;-0 Keeps life interesting!