Gilenya?
Hi havnt posted on here in a while,
Been on gilenya for a year and 7 months now and it's fine, keeping my relapses away but it's dropped my immune system.
Does anyone else worry about having a low immune system, I just feel like I'm at risk of getting so many bad things i.e cancer!!! My biggest worry as I know that Ms won't kill me but I'm putting something in my body that might.
My anxiety is major about this at the moment and I can't control it. I have 2 young children and want to see them grow up and get older. And the thought that I could possibly be depriving myself of that is killing me.
Help needed desperately 😭
Awww that’s awful I didn’t realise these drugs put us at risk . It’s a hard d one is there any other med you can go on are they all risky I’m on Avonex didn’t realise that’s why my immune system is so bad
I'm not sure if it's the same on avonex but gilenya is playing with my mind. I'm really struggling at the moment. There are others to go on but I think they all have the same sorta side effects. I'm in a ridiculously hard situation, weather to stay on it and keep my body asin no relapses or come off it and risk relapses but keep my sanity and hopefully my immune system gets better. So fed up it's unbelievable I can't cry anymore. I know there are so many others on this drug, I was just wondering if they feel the same to. Just need help I think