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@Enxsjp 

Last reply

Enxsjp

Severe Relapse

Morning everyone, I was just wondering if anyone could help? I was admitted to hospital as an emergency last Saturday Night. They believe this is a MS relapse, but they won’t do an MRI until May to confirm (go figure!) However, to cut a long story short. I was recovering from my last relapse (1 month ago) when this has happened. Last month I was able to walk short distances with two crutches, I am now in hospital and unable to walk at all. I can stand for a few seconds and I have my upper body strength, but all the strength and function from my legs have all but gone. Left is very bad, right is bad. I am being referred to the neuro rehabilitation centre when there is a space available. If anyone can help me understand what has happened that would be great. I feel the docs are a bit blasé about the emotional impact. Thanks! S
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@Stumbler
@Stumbler
 

@enxsjp , I'm so sorry that you've had this turn of events. I would hope that the hospital has performed the basic blood/urine tests, to rule out a run-of-the-mill infection causing a "pseudo-exacerbation". Were you given high dosage steroids for your last relapse? This would be the normal treatment for a life-impacting relapse, to bring it to a quick conclusion. Although, steroids should be limited to twice or three times a year. Also, as it may be that you have highly active MS, you may want to think about the need to adopt an efficacious Disease Modifying Therapy (DMT)...........

@grandma
@grandma
 

Hi @enxsjp you are going through it at the moment. What is a huge change for you is everyday for them so you have to understand they don't actually see things the same way as you. They are probably trying their best but between junior doctors who have to 'report back' to a consultant, who you will be lucky to see and nurses who can only 'do what they're told' you are in the middle. You can only sit back and not stress cos that won't do your ms any good! It's a horrible situation, I've had the beast for 25 years, relapse a couple of times a year, have had endless problems with the NHS, I know when I'm relapsing, have sat for hours in A&E, but unfortunately we are all so different, and very unlikely to die, so we get pushed back all the time. Be grateful for the fact that you have already been admitted and are under somebody's care. Things do not happen quickly with ms. Have they given you steroids? If they treated you with them a month ago they understandably won't give them again. Too big a subject to give a quick answer to, but we're always here for a moan, rant, celebration, and if you have a specific question, someone here will have an answer. Good Luck👂🙏🏻🤞😜