Last reply 5 months ago
Recently diagnosed

Was diagnosed in June this year, after years of having different illness , nothing was looked into in depth, this could have been picked up earlier, as yet the treatment is too deal with the pain, But still very much coming to rerms with it as not back in work yet, and not knowing if i can still do my job….

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5 months ago

difficult one depending on the level of your illness but there are a good many that do remain in work, you are the only one to make that call.
I write a monthly blog telling from the beginning of life with MS, have read, it enlightens many and encourages a few too

5 months ago

@deborah_louise_linnett , you’re at a low point, having recently been diagnosed.

I hope you have a follow-up appointment with your Neuro, as the next step for you will be to discuss treatment. Have a scan through some of the literature under the “Newly diagnosed” tag on this site :-

You’ll quickly, I hope, start to see the light at the end of the tunnel. Then, things will look better and you’ll feel better. In the meantime, keep resting up, your body needs the rest.

5 months ago

It may take some time to “Come to terms with it” but consult your Dr, close friends, us and any other support system you can rely on.

In the US I never “came out” at work when I was at a private company or when I was a consultant as I was concerned about the ramifications. If that is a concern also check into the disability law for your country and into the policies and programs for your company.

The policies/processes for the company I was just at were much better than they are for the programs available through US Social Security so I would have been better off jumping on them when I was in the company if I would have qualified but I think I will do just fine moving to a contract to see if I can do that. If I find that I can’t do it I will need to quit and consider disability. I’m thinking I can handle a couple more years of work but we will see. No one…with or without MS really knows what tomorrow brings. That is what I need to remember.

You will find it is a common story that most of us took years to be diagnosed or when through several diagnoses’ before we landed here. My symptoms were easily explained as this or that for at least 5 years before I happened upon the right Neuro (at U of Minn in USA) that specialized in MS and sent me in for MRIs and looked into it.

In this group there is a great wealth of understanding, a great breadth of what is done in different countries and wonderful compassion. So welcome.

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