Hi all, it’s fair to say I only post when I want a “rant”
Today I received a letter after 5 weeks of trying to get a call off one of my MS nurses ,
Unfortunately I don’t meet the criteria to be given they opportunity to benefit from this drug ( what they fail to say is your 57,to old )
I have PP MS, diagnosis about 24 months ago , non of the pain meds work for me , physio not that helpful.
Can I ask has anyone with ppms been put forward for this drug yet in the U.K. ?
Unfortunately for them I will not let this lie, not sure how though because I’ll risk breaking an already fragile relationship
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