Last reply 3 months ago
Numbness

I touched on this a few weeks ago but its driving me mad been having migraines and headaches but what is new that im worried about is this constant numb, heavy/pressurised and pulsating feeling on the side of my right head its has been going on for 3 weeks, im not on any DMT till they see new changes on the MRI and im due to have my 3rd one this month it has been a year since the last one, I feel with this numbness theres something new or a relapse thinking the worst, in the mean times my ms nurse has started me on amitriptyline 10mg one a day at night I dont feel its helped but only been 3 days can anyone else relate? Thank u x

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stumbler
3 months ago

@melmel1 , you’re in danger of thinking yourself into a relapse, You just don’t want it to become a self-fulfilling prophecy.

You can find yourself spending all your time worrying about something that may never happen. And, if it should happen, you will have suffered twice.

So, try and chill out. This might even improve the headaches……….

Just out of interest, have you had your blood pressure checked recently?

Amitriptyline is a good start for dealing with neuropathic pain. It should give you a good night’s sleep if nothing else. So, don’t take it too late at night. No later than twelve hours before you intend to get up the next day, to avoid the “zombie” effect.

However, do keep talking to your MS Nurse. Not all drugs work for everybody, so there are others if the Amitriptyline doesn’t seem to work.


melmel1
3 months ago

@stumbler Thank u for ur advice, I will try and chill out , its funny u mention the blood pressure every time the neuro has dne it its been on the high side to the point where he said if it carrys on like this I would have to go on medication thats been like 3 times, but when ive dne it at home it drops to 130/85 some people say it could be because im nervous when I see the neuro that it rises im not sure, is 130/85 a bit on the high side when at home? Thank u x


stumbler
3 months ago

@melmel1 , Your home blood pressure is a lot better than mine. At 18:45 this evening, I was reading at 190/90, which is a bit high. But this does go up and down throughout the day, averaging out just in excess of 160/80, which is still a concern for my GP.

I’m expecting to keel over anytime soon. 😉

I would say that 130/85 would not raise too may eye-brows.

And, medical professionals are used to patients having a raised blood pressure due to the situation. They normally reduce the reading by five to account for this.


melmel1
3 months ago

@stumbler You did cheer me up lol, are u on blood pressure medication? X


stumbler
3 months ago

@melmel1 , yes, my GP is trying to find one that works, without causing other problems. Like I say, not all drugs work for everyone.

So, I’ve been experimenting (or my GP has!) for the last 6 months or so……..


chezy17
3 months ago

I have been like it on my left side, it goes down my neck aswell. Lesions are on my left side but I think mines the stress with everything off which to be honest is gonna drop my immune system more. I’ve never suffered with my MS so I know it’s anxiety which I’ve also never had till now. I’m actually going to go back to work, I think that might help with things. I’m a people person so it’s hard not being around people apart front he munchkins whom are my world but I do miss adult people 😂😂.


melmel1
3 months ago

@stumbler hope u find the right one x


melmel1
3 months ago

@chezy17, same I prefer to be busy, I would say it was not long after this lockdown I started feeling weird, I did have sme anxiety at the begining of lockdown, u might be able to help me I have my 3rd mri this month the first one was head the 2nd spine and head but this one this month is just the head, is tht normal to do just the head when I have a lesion on the top of the spine and the rest on brain, Thank u x


chezy17
3 months ago

I’ve only ever had 1 spinal MRI, that was both when I first was diagnosed. Since then I’ve only had brain MRIs but my mobility and everything is fine which could be why but I’m not sure.
I enjoyed not running around but trying to shop and everything aswell as staying safe made it all worse. I’m just not a house bunny, my house should be immaculate but I’ve got 2 kids so as soon as it’s tidy a bomb goes off. Wine o clock comes in handy but not good for the liver or kidneys 😂😂.
😊


leeann_dries
3 months ago

melmel1,

I have had MS for over 20 years and the numbness is soooo infuriating I know. You have several choices I feel. 1) you could scream at it every day intl in submits to your will 2) you could carry on like it does not bother you or 3) ask your DR. about Gabapentin.
I am partial to 1 and 3 because I am hyper aware of my symptoms and ignore NOTHING!!!
Anyways…… I am so with you girl, but there is no cure but there is help.

4 years ago I had to have radiation and chemo. Non the less to say the chemo made the numbness unbearable, I had such a hard time walking, so my Oncologist up the dose of my Gabapentin and my Nero Dr. agreed. so I hope this was helpful

Lannie


stumbler
3 months ago

@melmel1 , I would raise the issue of the MRI with your Neuro/MS Nurse. If it’s to check on progress, then it seems reasonable to do both brain and spine, as you have had activity on both before.


melmel1
3 months ago

@chezy17 Hi hun thanks for reply I was thinking that too maybe thats why there not checking the spine as my mobilitys fine all very confusing, haha wine oclock, can I Just say ive always loved ur positive spirit with this MS.x

Leeann_dries Thank you for the advice I hope things have settled with u and the chemo, I knw I feel I have to calm down or loose me marbles lol, Ill ask about the Gabapentin if this one does not work thank u x

@stumbler I will call my Ms nurse and query why I am having just the brain scan and not the spine on top as well thank u.


puru_ntuli
3 months ago

I was diagnosed in with MS, at 51, in 2017 and have been treated with Copaxone, Tysarbri, back to Copaxone, Ocreveus . I had relapses while on Copaxone. Ocreveus did not help me. I learnt about Akanni Herbal Centre  ( www. akanniherbalcentre .com) and their effective MS Formula treatment after i tried other medications with no luck ..i followed up with their MS herbal formula which after i completed  the treatment, symptoms were gone, and the MS Herbal treatment relieved my symptoms totally and tremors gradually stopped, Thank you Akanni Herbal Centre for giving those of us with Multiple sclerosis  hope.


melmel1
3 months ago

@puru_ntuli thank you, do u go to the center or order ur herbs? What is there formula. Sounds intresting hoping ur feeling much more stable now x


stumbler
3 months ago

@melmel1 , I’d be surprised if you got a reply. If you do, please ignore it. This is a scam artist.


melmel1
3 months ago

@stumbler the person that messaged me? Gosh some people ey thanks for heads up x


stumbler
3 months ago

@melmel1 , we’re a captive audience and these people know we can be desperate and vulnerable.


melmel1
3 months ago

@stumbler so true 😘


chezy17
3 months ago

@melmel1

Thanks chick, I think sometimes it’s the only way I can get through it. Don’t get me wrong, I have my crap days but I have abit of a rest and a meltdown and I’m good to go after. You either let it bring you down or you just fight and I know which know which one I’d rather do. Take care chick x


melmel1
3 months ago

@chezy17 Its so true we got to fight😚

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