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stumbler
8 months ago

Hi @ellie_jones .

There isn’t a straight answer to your question. We’re all different and what works for one, won’t work for another.

But, the latest thinking on treating MS is to hit it hard and fast with the most efficacious Disease Modifying Therapies (DMTs). It will be your job to persuade your Neuro accordingly. They may be old school, starting with the less efficient DMTs, only moving up as you accumulate damage.

Here’s where you can find a lot of information :-

https://support.mstrust.org.uk/file/DMD-Book-Final-WEB.pdf


ellie_jones
8 months ago

Hi, of course šŸ™‚ I’m just not sure about options at the moment. The neurologist I spoke to was very easy going? If that’s right. He didn’t want to push anything ha, I’ll have a look at that link, thank you x


itsmewithms
8 months ago

Sounds like you may be having more discussions upcoming if you’ve recently been diagnosed. Hopefully you are working with an MS specialist that can give you good advice. This is one link I have kept as an intro to some of the DMTs remembering that the list of approved drugs varies by country and a good MS specialist should be able to recommend one(s) that will be the best one(s) for you to try.

This forum is a great resource and if you have questions on any of the options or symptoms, etc. use the little magnifying glass in the upper left to search for prior discussions on that topic- https://www.healthline.com/health/multiple-sclerosis/how-to-evaluate-your-ms-treatment-plan?utm_source=facebook&utm_medium=opt&utm_campaign=tysabri-retargeting-ms-desktop&fbclid=IwAR1oCSj5oRuEzJc2B4mTiwvcw_Qnwgsn-3zRzy3mU_s1cjLsvZV59_DYjsQ#the-bottom-line

Welcome and good luck!


lisa_morghan
8 months ago

Hi back this Lisa when comes medication
For MS is pretty much up to your neurologist i hope you have a good doctor seriously do your homework internet is here i have found just “google” your questions ask google my own family Mother Sister and now myself have been diq. With MS im Lisa and seriously DOING research find web sites just dont be shy !!! Be bold its your body they now have gotten medication for MS every one every body is different in its own be careful be safe “GOOGLE ” its helps alot much Love Lisa


veronika_keir
8 months ago

Hi @ellie_jones,

I was diagnosed with RRMS last November. It’s true that it’s not the same road for everyone, and what works for one person won’t work for another. My neurologist has been pretty good at providing options and then letting me research them (he also gives me pamplets, booklets, etc.). We usually discuss potential options quickly, he makes his recommendation and then he’ll give me a few weeks to research and think about all my options.

Originally, I was prescriped Copaxone 20mg each day. We recently discovered it wasn’t effective for me (even though he has other patients in similar RRMS states and it’s working for them), and now we’re moving me to Ocrevus.

Definitely do your research, weigh the pros and cons, and make an informed decision. Don’t let them push you to something you really don’t want to take.

Hope all goes well!


rachiervn1983
8 months ago

Hi Ellie,

I was diagnosed almost ten years ago and remained DMT free. I had one relapse this year but generally just symptoms in the past ten years. I guess it is a personal choice and some believe diet and lifestyle changes can help slow down progression. Iā€™m currently torn between enjoying my life and being healthy šŸ˜† research and decide what you think is best for you x

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