I was diagnosed with RRMS November 2018, but have apparently been experiencing the MS Hug since approximately 2012. For me it’s the typical girdling pain around my rib-cage. It can be dull or it can be sharp, breathing is often painful and my muscles are all extremely tense.
There are times where the hugs are rather mild – in a lot of discomfort and some pain but able to push through. Other times it’s absolutely excruciating – where I’ve gone into the ER for some sort of help, or I’m unable to do anything other than writhe in pain and wait until it stops – which can be 12+ hours, usually in the evening/overnight. Also, when it’s really bad my rib-cage will be sensitive for up to a week (feels like I was kicked in the sternum, and my rib-cage was beaten).
Last night I felt the hug coming on around 6PM. I had hoped it wouldn’t progress but it did and it was horrible. Up all night, managed to get about an hour of sleep from 6AM-7AM. It’s now 9:30AM and I’m still in pain – although not as excrutiating – and a lot of discomfort.
I’m wondering if anyone experiences the hugs to this degree and if there’s anything that can be done to help manage the pain? Or what I should tell my doctor to get help? I’m getting desperate.
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