@Avengr13 

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Avengr13

Moving to stage 2

Today I need some pumping up. After 30 years of RR I have moved to SP. I got used to it all and now I have to deal with all the new stuff. I know all the things I would say to myself if I were another person. You are so lucky Well at least you had thirty good years and some only have a few good years At least you are walking At least you still can think clearly And I think that I want to punch them (I wouldn’t but I want to). Now I have trouble walking and always need my walker or a motorized chair. I can’t easily get out of bed, my bladder has no control and my bowel is now not very dependable. And I have pain. And sometimes I ask myself why the medical community seem to have bypassed me. Rrms is big and progressive is important. I think because I was in the 1st group. So we have fallen into the cracks. Just ranting and feeling sorry for myself today. This is a safe place where people understand my situation.
@Stumbler

@avengr13 , this is far from the end of your book. It's just the start of another chapter........

@grandma

Dear @avengrl13 I had rrms for 23 yrs and have had spms for 18mths so I know exactly what your going through. I was totally on my feet (albeit slowly and a bit wobbly) and then wham! Bought a mobility scooter 20 mths ago, the then other half thought it was a waste of £800, we are no longer together after 43 years of marriage! Now on my own and better for it (probably) Belive me, he was my carer for 20 yrs but for the last 10 it was done out of duty not love so I'm pretty sure I'm better on my own. The NHS gave me a powered wheelchair a year ago, so between my equipment and the through lift and ramp that the council have put in, I'm sorted and can face the world on my own which is a good thing because I gave no-one, no family who speak to me, no carer, nobody. We can and will survive after all we're mser and we have a sense of humour (which we need cos if we're not laughing, we would be crying and that's not good for the ms so anything that we can laugh at is good😍😛🤡