Last reply 7 months ago
Maybe MS?

Found 2 small lesions on my brain scan w/ contrast. Met with the nurse practitioner at my neurologist’s office (have never met him), and she doesn’t seem to be worried. But I have notice serious changes in cognitive areas, and still have left side facial numbness, and now feel like something is crawling on my scalp and itchy skin. They have a sleep study, neck ultrasound and follow up MRI brain scan in the next 2 months, but she doesn’t seem to think it’s anything. I AM WORRIED. Am I crazy?

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7 months ago

Hi @patty_stuckey and welcome.

As far as the MRI with contrast is concerned, those two lesions would need to be highlighted, to signify active relapse activity. If they are just visible normally (if that makes sense!) then it relates to historic damage.

This differentiation would dictate whether there should have been any reactive treatment, e.g. Steroids, considered, or not.

If you have any concerns, get back in touch and express your concern and ask why no action was taken.

7 months ago

I would get a second opinion, I have had too many doctors and nurses act like I was hypochondriac or crazy because of MS symptoms. I didn’t stand my ground and wondered if I had MS for twenty years. When I was finally diagnosed they just shrugged their shoulders and walked off. Potter

7 months ago

Of course the nurse isn’t worried as the lesions and all this stuff going on aren’t happening to her! But you have every right to be concerned when they are happening to you. If you have active lesions they should be able to do something (they used high dosages of IV steroids on me that were very effective) to shut them down. Doesn’t sound like that is tolerated by all but I did very well with them.

Is this a Neuro that specializes in MS? If not maybe you need to find one that does. If they do have a MS specialty I would think they would know better to work with a MS newbie…imho. I was diagnosed 15 years ago so basically as we say in the midwest (US) “this isn’t my first rodeo” and the Dr understands that.

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