Last reply 3 months ago
How will coronavirus impact MSers?

🚨 BREAKING 🚨 How will coronavirus impact people living with MS? In this video, MS Reporter Dominic talks to Professor Gavin Giovannoni 🎙️❔ to get answers to questions about coronavirus from the Shift.ms community 🦠

We learn about what the virus is, how it might affect someone with MS, strategies we can all use to protect ourselves, and a definitive answer on the big ‘mask question’….

It’s important to note that what’s been discussed in this video may well change in the coming weeks. This is a rapidly evolving situation, but at Shift.ms we’re doing all we can to provide the most accurate, trusted and current information and advice on coronavirus. This interview was accurate as of time of recording (11/03/20). We’ll keep all our public information under review.

If you’re looking for further reading on Coronavirus and MS :
🔹 MS Reporter Dominic’s blog on Shift.ms – An “MSers guide” to share the facts and dispel myth and worry here 👉 https://bit.ly/3cPxHPn

🔹 Barts MS Blog – Very regular posts from the Barts MS team, commenting on the good, bad and other aspects of MS research here 👉 https://bit.ly/2Qa1pVy

🔹 MS Society – Statement from MS Society medical advisors giving helpful, practical advice on COVID-19 Coronavirus, kept under continual review here 👉 https://bit.ly/2TIa3wI

🔹 MS Trust – Great advice for MSers on what the virus is, risk and prevention here 👉 https://bit.ly/33dBcLc

🔹 NHS website – for clear information on symptoms, transmission and what to do if you think you might have Coronavirus here 👉 https://bit.ly/2TMdu5M

🔹 Guidance from the Association of British Neurologists on the use of DMTs during Coronavirus epidemic (info for healthcare professionals and MSers) here 👉 https://bit.ly/38Lssx5

Do you still have queries about Coronavirus and MS? How have you been managing in this uncertain period? Was this video helpful? Please share your thoughts with us ⬇️

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alicia_manji
3 months ago

Help … my husband is a dr and his hospital has just confirmed their first case. He’s in ICU where the patient is being held in isolation.
They know I’m immuno suppressed and so he shouldn’t be on the front line, but it’s only a matter of time until he has to step in.
I’m not sure what to do? Do we live separately for a while until dies down?
He’s worried he’ll transfer it to me and neither of us (or his colleagues) are sure what we should do…
Any suggestions would be really helpful.


dominics
3 months ago

My wife is a primary school teacher. Although the kids are pretty safe they are very effective vectors to and from their home.

We are using all the hygiene precautions recommended and, at this stage, are not overly worried. Hyper-sensitised indeed. Freaking out? No.

If the patient and your husband have not been in direct contact then, at the moment, it doesn’t sound as if your risk is particularly enhanced.

Who am I or anyone else on the forum to comment really? Generalities at best. I imagine his hospital will be ahead of the curve regarding this.


itsmewithms
3 months ago

Thanks Dominics…we are just having the first cases this week around us and awareness is spreading with some people saying it is just a bad cold and others in a complete panic…the usual! ;-0 My Dr called back yesterday and said that if I want I could postpone my next Ocrevus infusion from mid April to mid May and I said that I would call back next week to discuss…we’ll see how it goes. Thinks are changing so rapidly I won’t commit to something due to happen over a month away…


vixen
3 months ago

@dominics, thanks so much for nailing this, it was very reassuring. Dr G’s advice has been great, and I love that he yielded that his own advice has had to change due to the evolving nature of this thing! Good health, all….


alicia_manji
3 months ago

@dominics agreed – thank you for your message. You are right – it’s easy to get in a panic.
I guess we can only work day by day.
Wishing everyone well. Stay safe.


dominics
3 months ago

Thank you everyone, here and mostly on Twitter ( @DJS-KBO ), for your kind words. I was just the mouthpiece. The Shift team, Fiona was the public face, did all the hard work setting it up, dragging Gavin into spending some time – he is a kind chap – then recording, editing and getting it online.

My Twitter has gone made with this one thing. The video has been viewed c. 5000 times already and it has been the vision of the Shift.ms team. I asked questions from a script that we had agreed. That was all really.

PS: DJS are my initials, the KBO is Churchill’s maxim to ‘Keep Buggering On’

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