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@insomniacoffeelover 

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insomniacoffeelover

Gilenya - 6 months scan new lesion

Hi all, I had my scan 6 months after starting Gilenya (Fingolimod) and it showed a new lesion. The rest were stable. The nurse told me not to panic as new lesions can appear when patients are between treatment (I was off treatment for a month between Tecfidera and Gilenya) so I will get a scan in another 3 months to see if there are any further changes. Has this happened to anyone else on Gilenya? thanks all, Gillian
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@DominicS
@DominicS
 

Hi, The best research suggests that guess is that scans capture c. 50% of disease activity. No direct correlation between MRI results and patient experienced issues either! Additionally, was it the same machine, have they changed the magnets or software for later versions? I.e: is it perhaps picking up stuff that wasn't previously visible? Perhaps you lay more still? There are an absolute ton of variables that can affect from one MRI to another. There is a current line of thinking that barring IRT - Alemtuzumab, and HSCT aside - that MS smoulders away. Sometimes seen, sometimes unseen. Isn't uncertainty fun? Sorry not to be of greater help. The message is don't stress too much until you have absolutely nailed the answers to the above and more. Even then it is a progressive disease. Gilenya isn't a cure, it is chemical brakes. Best, Dom

@Stumbler
@Stumbler
 

@insomniacoffeelover , the lesion may well have started shortly after you began Gilenya or before it was effective. The next scan will provide some answers.