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@stacey 

Last reply

stacey

fingolimod

Iv had MS for 11 years, iv recently had my first relapse since being diagnosed, I’m on Conpaxone injecting 3 times a week, but my neurologist wants me to try fingolimod has anyone been on this medication? Also what’s it like? Thanks guys x
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@Stumbler
@Stumbler
 

@stacey , a "Gilenya" tag has been added automatically to the bottom of your post above. Selecting this tag, will access all previous conversations about Gilenya, aka Fingolimod.

@Breezy19
@Breezy19
 

Hi @stacey. I switched from Copaxone to Gilenya/Fingolimod 6wks ago at my neuro's recommendation after my most recent MRI showed a new active lesion. I've had no problems with Gilenya at all. There were a lot of tests I had to get done before starting (ECG, JCV blood test, normal blood count, eye test) but they were simple. The first day dose had to be done in hospital so I could be monitored for 6 hours - I was actually disappointed when they said I could leave because I'd had a lovely uninterrupted day to read books and watch some netflix!! Haha. The neuro told me I can't get pregnant while on it, so that's one thing to keep in mind. One thing I read about after starting it, but the neuro didn't tell me, is that you can't get any "live" vaccinations if on Gilenya. This includes the yellow vaccine, which is required for travel to Africa and South America. If I had my time over, I'd get the vaccine done before starting the med, as I would love to travel to those places :( I read a lot of the scientific literature about Gilenya, and despite the many risks and considerations that get mentioned by docs and online, I decided that the evidence in the literature confirmed that it is a very effective DMT compared to Copaxone, so I decided it was worth the risk to keep my MS at bay!