Last reply 2 weeks ago
Dinnerlady

Hi all haven.t posted for a while been receiving Ocrevus infusions for a year as now but still feel as though I.m declining. Went to my niece.s wedding last week and had to use a wheelchair so feel as though this rotten illness is now beginning to win. Pain seems to be appearing everywhere lately so considering trying C.B.D. have spoken to my Consultant who says it may help any thoughts love to all

Add categories

Browse categories and add by clicking on them

You can remove current categories below by clicking the ‘x’.


itsmewithms
2 weeks ago

Hi @dinnerlady, I just found this forum just over a month ago so likely have missed your past posts. One thing to keep in mind is that you were, at least, at the wedding 😉 I went to a “remembrance” event last week for a high school classmate that had a massive heart attack. Her family was still reeling as it was so unexpected. Made me realize that, indeed, things could be worse!

Instead standing in the crowd I invited the people I was hanging with to sit at one of the many available tables. As we talked many of them discussed physical issues they are or have worked through. Broken backs, cancer, deaths of close family members or spouses. Brought home that we all have so many challenges and joys in our life. This is just a good management technique for me…don’t stand when you can sit!

The use of CBD also came up there as a classmate with awful back issues has used them although he mostly relies on narcotics. I don’t really experience Pain due to MS…I don’t think but have more of what could be called “nerve pain” as I have seen improvements in fatigue and cog fog from taking Gabapentin and then switched over to Gralise. I was also started on Ocrevus with my first half dose last Wednesday. I’m not expecting a miracle cure but keep a bit of a diary and see that I am walking more now without a walking stick and haven’t had any unusual falls due to balance. I know that Ocrevus takes time (likely a year or more) to be fully in effect so giving it time.

Also going to regular PT prescribed by my MS Dr and am currently not working so doing what I can to better manage stress and get enough sleep. Another advantage to not working is being in better control of my diet and eating times. Trying to take better care of me and give Ocrevus a chance-

Join Shift.ms to reply to this post.

Become part of the community so you can chat, compare and learn from other MSers.