Depression
Hi my name is Billy Sutton. I was diagnosed with MS 7 years ago but kind of knew it since I was 19. I’m 51 now. Just had episodes over the years with long breaks where I was just fine. I get depressed and annoyed because most people don’t have a clue what we are going through. Even so called friends and family just don’t get it. So I say screw them. But it does get frustrating. Anyone feel the same?
@kbmsutton1 Hi Billy. Yes, I feel this way too. I find it annoying, as well as sometimes hurtful, that people close to me don't even seem to want to understand or pay any interest to understand how my MS affects me. I felt I had much more support when I was going through the initial stages and diagnosis but now it seems everyone has moved on / forgotten. But maybe I'm being unfair because on the one hand I don't want to be treated any differently either but I guess I just wish that even my partner, would understand that despite wanting to, I can't do the same things as him. I think he thinks I'm making it up and being lazy and has never seemed to take any interest in this aspect of me and my life and the constraints/struggles :( Maybe people just aren't going to be interested unless it somehow affects them. It would be nice to feel that they at least cared though as i'm sure I would if it were someone I cared about...
Hello @kbmsutton1, yes, this can be an isolating business. Also, when you do tell people the novelty can kind of wear off. This is such an inconsistent condition, I guess it is quite hard for others to keep up with our ebbs and floes. I hope you are getting regular check ups and that you take something for your depression?