Last reply 5 months ago
Coronavirus – Some Clarity At Last

Prof G at Barts has written an excellent article that ought to dispel a great deal of the fear (I too have been v concerned) many of us are feeling about the drugs we take and the risks they pose regarding becoming infected with Covid-19.

This covers areas such as starting DMTs, maintaining a redosing schedule, the areas of greatest/least concern for patients and medics alike and a range of other relevant things.

This is not technical and I can’t recommend enough reading this as a balanced and up to date article.

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https://multiple-sclerosis-research.org/2020/03/dmt-use-during-the-covid-19-epidemic-needs-to-more-pragmatic/
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regj
5 months ago

Really interesting post and some very good points regarding the comparison with transplant patients. Everyone on a DMT should read this! It’s the most info and detail any of us are going to get right now. Thanks for sharing @dominics


dominics
5 months ago

@regj – pleasure

It is really hard to navigate the should I/shouldn’t I repost things I read. This article had made me breathe far more easily (excuse the pin) regarding the extent of my ocrelizumab exposure. It also answers many of the sort of qu. being posted here and other places.

I just love how the community – esp the leading neuros – have come together over this.


vixen
5 months ago

@dominics, this is much more reassuring. Given that you’ve posted such a lot of advice and updates, it’s great to read something more reassuring. Perhaps you can start to un-hermitize yourself a little 🙂


dominics
5 months ago

@vixen – indeed. I just had a brief walk!

I am interviewing Gavin G for Shift.ms in a few hours time and this is great for him to have made his position very clear. It makes the conversation much easier and more focused.


vixen
5 months ago

Yes he does indeed. He also appears to be one step ahead of all other bodies in transmitting information. I’ve actually advised people from my local MS Society branch to look in for the latest Prof G updates. My sister, who had her second Ocrevus infusion 8 days ago hasn’t been given any follow-up advice from her hospital, so I have been posting her excerpts from Prof G, including the one from today. So please thank him for attending to the needs and concerns of the masses! And thanks to you too @dominics


davidmc
5 months ago

Our hospital seems to have pulled ocrevus infusions for the time being. This is all very confusing, as if it is relatively safe i wouldn’t want to delay treament.


dominics
5 months ago

@davidmc – that is tough. The disparity between what hospitals seem to know, what they are telling people and easily accessible high quality information online is something I will be asking Prof G about in an hour or so.

Bear in mind the video won’t be available for a day or two as it needs to be edited etc.

If I learn anything useful then I will of course post it here.


davidmc
5 months ago

Many thanks


watsoncraig
5 months ago

@dominics as long as you have enough toilet paper you will be fine


dominics
5 months ago

@watsoncraig – I am baffled by the fascianation with bog roll.

I have a showerhead on a flexible hose should we run out. It is the norm in many countries.


makingameal
5 months ago

Thanks again, look forward to seeing the interview. A bit more clarity on avoiding busy areas, working from home etc would be good to know if it’s not too late to ask!


ray_thomas
5 months ago

thanks …that calmed me down a bit !!


dominics
5 months ago

@makingameal

The questions you ask fall under the remit of the general public health advice. Wash your hands, avoid exposure to groups and generally do as Public Health England, the CDC or WHO.

Assuming no pre-existing comorbidities (other things that give you less than perfect health) and the fact that you are not on Alemtuzumab or in the run up to or 1y after HSCT then it turns out that the risk isn’t too bad.

One message that was loud and clear was the fact that the advice is experience based and not based in robust trials, no time. Additionally, it is essentially best-guess and the caveat that it is likely to change was made v clear.

Me? What a way to dodge the people you don’t like!


watsoncraig
5 months ago

@dominics I have just watched your video about corona in FBshift, well done


dominics
5 months ago

@watsoncraig thank you. Surreal feeling looking back at it. The editing zoomed in on me so every little movement makes me look as if I have a bad case of piles.

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