Last reply 1 week ago
Advice please ?

Hi all, this is my first post and would like some advice. My wife has SPMS and can do very little for herself now and i am her sole carer 24/7…
The difficulty i am having is lifting and transfering her multiple times during the day and night to the loo. It is on average 40 lifts a day, from chair to wheelchair, wheelchair to loo, loo to wheelchair then wheelchair to chair. She cannot weight bear and this has been going on for over 2 years and i am now struggling. I am not getting any younger and i am exhausted.
Contacted GP, MS nurse and nothing is offered as a solution ? All i hear is that i shouldnt be lifting but given no alternative suggestions.
I am really struggling with this daily routine and dont know what to do next ?
We also had a visit from occupational health and again, no real help as to the immediate issue.

Any suggestions please ?

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stumbler
1 week ago

Hi @tom11 . I can sense your desperation with the current situation.

Unfortunately, different agencies don’t seem to be able to talk or work together. But contact your Council :-

https://www.birmingham.gov.uk/info/20018/adult_social_care

They should come and assess your situation and then let you know what assistance they can provide. There may be a cost for this assistance, which depends on your financial circumstances.

You may also be eligible for this, unless it’s already claimed :-

https://www.birmingham.gov.uk/info/20144/exemptions_and_discounts/810/homes_adapted_for_a_disabled_person_discount


tom11
1 week ago

Hi @stumbler, thanks for your reply 🙂

I have contacted the local council, in fact it was after i had to call an ambulance for my wife that they contacted social services and it was followed up with the OH visit.
As a result we have been given a shower chair which is supposed to fit over the loo but doesnt…. so that is now redundant and needs to be returned.

We have claimed the reduction in council tax which is a help and more people should take advantage of this.


stumbler
1 week ago

@tom11 , call Adult Social Care and explain the problems. They should be considering more assistance than that!

Let them know your problems and concerns. Hopefully, you’ll speak to a more sympathetic, understanding person!


watsoncraig
1 week ago

@tom11 her MSNurse can help to get a neurologicPhysio appointment who can assist with aids.

A “toilet frame” is what you are after.


watsoncraig
1 week ago

Hit the wrong button


watsoncraig
1 week ago


watsoncraig
1 week ago

Right I am going to type this in

amazon.co.uk/Best-Sellers-Health-Personal-Care-Toilet-Safety-Frames/zgbs/drugstore/2826335031


tom11
1 week ago

Thanks @watsoncraig 🙂

The aids are not so much the issue as i have grab bars etc in the bathroom.
The main problem is the lifting in order to transfer constantly

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